When Justin and I found out we were pregnant we were absolutely ecstatic that our family of 3 ( we  have a 3 year old son ) was about to be a family of 4. When I was 13 weeks pregnant we found out that our daughter has birth defect called gastroschisis. This is a birth defect of the abdominal (belly) wall. The baby's intestines are found outside of the baby's body, exiting  through a hole beside the belly button. Throughout the course of my pregnancy was scary & hard. Towards the end we would have ultrasounds every week and they kept telling us that her intestines were swollen &  they were getting worse every week. My doctors then decided at 35 weeks that it was time to bring our baby into this world. On December 18th 2017 is when we met the most beautiful little girl Ayla Rose Swiger. This is the day her journey really began. On the day of her birth her intestines were very dilated more so then they thought & the  circulation was getting cut off. They did a surgery the day of her birth & put her intestines and bowels back into her belly, they then added an colostomy bag, and put a PIC line in her arm for TPN which is her IV nutrition ( she has been on TPN since birth & is 4 months old currently) She was on the ventilator for 1 week after her surgery. When they took her off she was in a waiting period for her second surgery. While we were waiting for her second surgery in January she  then developed at staph infection from her PIC line. She became apenic  (stopped breathing) 8 times within one night because of this infection. We didn’t know what was going on so they took blood, took X-rays, did a spinal tap, measured her for seizures, removed the PIC line and had multiple IVs that infiltrated. After 2 weeks we got her staph infection treated & she then had her 2nd surgery on February 13th; they successfully reconnected her. After her surgery she was on the ventilator again for 10 days. When she got off of the ventilator she had trouble eating so she was not able to eat for 28 days. She also had trouble getting her bowels to work properly so they did 2 contrasts to see how things were moving down. We finally got to the point where we’re able to feed her 10ml every 6 hours, she is not able  to tolerate anymore then that ( she is still currently feeding this way ). We thought we were on our way home but her surgeon at ruby informed us that we had to get sent to Pittsburgh children’s hospital.  When we got transferred to Pittsburgh they don’t another contrast and  immediately realized she had a functional blockage which is when she eats some of what she eats is going down and is able to have a bowel movement but most of it is staying in her stomach and she then pukes. They said that her 2nd surgery had failed. They told us she needed a 3rd surgery to fix the issue. She had her 3rd surgery scheduled for 4/11/18 but on 4/9/18 she came down with a fever so they took blood cultures to see what was going on & she unfortunately tested positive for the gram negative rod bacteria in her blood & also a rhino virus. The team of surgeons were forced to postpone her surgery for possibly another 3-6 weeks. Ayla has been in the hospital since birth & on the 18th will make 4 months. We have an almost 3 year old that we have to split time between, a 2 hour drive from the hospital to home, extensive medical bills & Justin has been laid off work for 4 months due to Aylas condition. We never thought we would be in this situation  but unfortunately we are. Please pray for Ayla that she gets her healing & this will all be over soon. Thank you for any help that you can provide. God bless every one of you.