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Celeste's Medical Fund

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Each year 5,600 people are diagnosed with ALS. A few months ago, my mother heard those dreaded three letters. We had no idea how drastically our lives would change from that moment on.

We are so lucky that my mother has the heart of a fighter, the mind of a researcher, and a soul that will not settle for defeat. Through extensive research, my mother found a direct correlation between ALS (a disease that cannot be diagnosed, but rather assigned to a person after other illnesses have been ruled out) and Lyme Disease. Through her research, she discovered that 9 out of 10 people diagnosed with ALS actually have Lyme Disease. Why is this number so high? Because the doctors that have a financially vested interest in ALS do not perform the correct test for Lyme Disease (there are MULTIPLE!). If they are lucky enough to detect Lyme Disease using the flawed test that is considered sufficient by the agency that sets the Lyme Disease protocol (which is NOT the American Lyme Disease Foundation as it should be, but rather the Infectious Disease Society of America - a group that does not familiarize itself with Lyme Disease), doctors only treat patients for an insufficient couple of months before they throw their hands up in the air and say, "Oh well, we tried. You have ALS - this is your death sentence." In light of this new evidence, doctors are afraid to recognize the new facts that have come to light because it would open them up to malpractice suits. 

Long story short, my mother sought out a doctor that believes in the science behind the studies and performs the necessary tests set forth by the American Lyme Disease Foundation. After being diagnosed with ALS, my mother has now learned that she actually has Lyme Disease. The problem? Health insurance companies refuse to recognize doctors that pursue the truth behind ALS. My mother and father (who has been caring for her during this time of immobility) now have to pay out of pocket for her treatments - treatments that can cost thousands of dollars, last years, and are physically debilitating. Both my parents are responsible individuals that not only have medical insurance, but also pay monthly for supplemental insurance. The insurance companies, however, as mentioned above, refuse to help them out. Might I add that these are retired individuals that have dedicated their lives to the families. It's our turn to try and give back. 

We are lucky enough to have support from people like you. Many have died and the truth has only been uncovered after their death due to autopsy reports because of the nature of Lyme's Disease and its diagnosis. I know the holidays impose hard times financially on all, but if you would be willing to help out just a little, it would be so appreciated!!

God Bless You!!

“Facts do not cease to exist because they are
ignored.”
~ Aldous Huxley

When ALS is Lyme
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Donations 

  • Ron Hay
    • $100
    • 10 yrs
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Organizer

Jodie LovesDogs
Organizer
Torrance, CA

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