After 25 years struggling as a freelance video director, I found a perfect home for my set of talents. At the same time, ALS crept in to my body and slowly ate away my legs. They just don’t move anymore. How is this possible, and why do 1 in 100,000 people still get this stupid gene mutation? It is shutting me down…

forcing me to turn away from my dream job.

I cannot begin to contemplate the financial strain that is to come. There is a good chance

if you go to concerts, you have seen my work on the big screens. I live my work, but now I cannot do either. Please help if you can.