The ALS Families Study Project, McLaughlin Family
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We are raising money for "The ALS Families Project" at The Eleanor and Lou Gehrig ALS Center at NewYork-Presbyterian/Columbia University Medical Center, in honor of the McLaughlin Family.
"The ALS Families Project focuses on studying clinical data and biospecimen samples from unaffected individuals who carry an ALS gene mutation, to better understand the earliest signs of symptoms of disease and ultimately, help develop treatments to prevent disease onset in specific familial forms of ALS." This is why we need your help!
OUR STORY:
Our Grandfather Thomas McLaughlin passed away in 1956 from ALS / Lou Gehrig’s Disease, leaving five young children to be raised without their father. He was only 38 years old. Grandpa Thomas is burried in Woodlawn Cemetery, Bronx NY.
Generations before him also died at a young age due to unknown causes. ALS was not yet defined.
After family research, collaboration and with the assistance of a genealogy website, we discovered that our Great Great Grandmother Kate McLaughlin also passed away at 37 years old and possibly suggesting that ALS has affected our bloodline even further back than we realized. Her sister took care of the children she left behind, before also dying shortly thereafter at the age of 40 years old.
Fast foward to 1992. Thomas McLaughlin’s daughter, Kathy of Bardonia, was the first family member in modern times to be diagnosed with ALS and passed away in 1998. She was only 49 years old. On the day of Kathy’s funeral, her brother, Tommy McLaughlin of New City was diagnosed with ALS and passed away in 1999. He was only 54 years old. If you can even believe it, there's more relatives affected by ALS in the same family. Tommy’s son Michael of New Windsor also passed away young from ALS in 2007. He was only 43 years old. Then, Kathy’s brother John McLaughlin of the Bronx passed away young from ALS in 2012. He was only 59 years old. Then in November of 2018, another sibling Rose of New City passed away. She was only 66 years old.
Currently there is no cure for this horrific and devastating disease. Please DONATE and share this link around the world and let’s help the McLaughlin family and other families suffering from ALS live longer and healthier lives like they all deserve. Thank you.
"The ALS Families Project focuses on studying clinical data and biospecimen samples from unaffected individuals who carry an ALS gene mutation, to better understand the earliest signs of symptoms of disease and ultimately, help develop treatments to prevent disease onset in specific familial forms of ALS." This is why we need your help!
OUR STORY:
Our Grandfather Thomas McLaughlin passed away in 1956 from ALS / Lou Gehrig’s Disease, leaving five young children to be raised without their father. He was only 38 years old. Grandpa Thomas is burried in Woodlawn Cemetery, Bronx NY.
Generations before him also died at a young age due to unknown causes. ALS was not yet defined.
After family research, collaboration and with the assistance of a genealogy website, we discovered that our Great Great Grandmother Kate McLaughlin also passed away at 37 years old and possibly suggesting that ALS has affected our bloodline even further back than we realized. Her sister took care of the children she left behind, before also dying shortly thereafter at the age of 40 years old.
Fast foward to 1992. Thomas McLaughlin’s daughter, Kathy of Bardonia, was the first family member in modern times to be diagnosed with ALS and passed away in 1998. She was only 49 years old. On the day of Kathy’s funeral, her brother, Tommy McLaughlin of New City was diagnosed with ALS and passed away in 1999. He was only 54 years old. If you can even believe it, there's more relatives affected by ALS in the same family. Tommy’s son Michael of New Windsor also passed away young from ALS in 2007. He was only 43 years old. Then, Kathy’s brother John McLaughlin of the Bronx passed away young from ALS in 2012. He was only 59 years old. Then in November of 2018, another sibling Rose of New City passed away. She was only 66 years old.
Currently there is no cure for this horrific and devastating disease. Please DONATE and share this link around the world and let’s help the McLaughlin family and other families suffering from ALS live longer and healthier lives like they all deserve. Thank you.
Co-organizers (17)
John D.
Organizer
Jocelyn DiNoia
Co-organizer
Kristina Castaldo
Co-organizer
Tricia Bosley
Co-organizer
Tara DiRocco
Co-organizer