It's a genetic condition where essentially my body doesn't protect my lungs..... And I am deficient in certain blood proteins that protect my lungs. Its fairly rare condition.... along with my lungs this also affects my liver.
Luckily I was diagnosed recently. And I say luckily because if left untreated I may have only made it to the age of 55 or so from what they say, scary right.
Well now I need to start treatment. And that's the most important thing. With a weekly treatment. I can live a long meaningful life. Which is important now more than ever with having a Baby daughter and a loving wife. so I'm asking people to donate blood plasma. Because this is how they make the treatment for alpha one.
Ok, so mainly I need help with my insurance , treatment costs and some travel expenses. And it looks like I'll be traveling to see a specialist at least once a year. That would be at least $1000.Then meeting with a local pulmonologist on a regular basis.... and fighting wth insurance companies ....
- Clay & Liz Finley
- Patrick Cauntay
- Brandy Johnson
- Edward Piper
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