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Alparas and Osman to Fight against Duchenne Muscular Disease

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We need your help for Alparas aged 7 years and Osman Tugra Tunc aged 6 years to Fight against Duchenne Muscular Dystrophy disease
We are raising funds to help two beautiful and brave young boys named Alparas and his little brother Osman Tugra , who is fighting Duchenne Muscular Dystrophy (DMD), a rare and debilitating muscle disease. for Alparas aged 7 years and Osman Tugra Tunc aged 6 years was diagnosed with DMD and while his parents, Murat and Nuray , were heartbroken by the lack of ongoing treatment options, they never gave up hope of find a lasting cure for their sons
After years of searching for solutions, the family finally received promising news: a treatment is available that could improve the boys Alparas and Osman Tugra Tunc quality of life.
A drug which is called ELEVIDYS priced at £2.6 million
this drug is a prescription gene therapy used to treat ambulatory and non-ambulatory people with Duchenne muscular dystrophy a very effective but at the same time a very expensive drug
it is very hard to understand why there is a price for the health and wellbeing and even life of any child in the world , unfortunately that is what we as adults made the world as it is today
However, the treatment is extremely costly, and they need your help to make it possible.
Alparas and Osman Tugra Tunc doesn’t have much time, but with your help, we can get the two amazing brothers the life-saving treatment they need . it is also very rare that both boys have this disease which makes it more heartbreaking for the parents of the boys and makes id that extra difficult in trying to provide the best care for both
It is now our chance to be Heros of these two boys Alparas and Osman Tugra Tunc by giving them a hope and a chance of a longer, and healthier life
Every donation, no matter how small, will make a critical difference in his fight against DMD.

Our Goal:
We are launching this campaign to:
• Increase awareness of DMD and its impact on children and families.
• Raise funds for the two boys to have the gene therapy drug called ELEVIDYS that can extend and improve the lives of Alparas and Osman Tugra with DMD.
• Provide emotional and practical support for families navigating the daily challenges of living with DMD.

Why Your Help Matters:
Each donation brings us closer to a world where the two boys with DMD can live longer, healthier lives because DMD disease also shortens the life span extremely .
Together we can give hope to families facing the unimaginable burden of this condition.
How You Can Help:
• Donate: Every contribution, no matter the size, fuels the fight for a cure.
• Share: Spread awareness on social media and within your community.
• Get Involved: Organize fundraising events, join our advocacy efforts, or volunteer to support families.
Together, We Can Make a Difference!
Your generosity will help pave the way for a future free from Duchenne Muscular Dystrophy. With your help, we can create real change and give these children the chance
to lead longer, fuller lives. Let’s fight together—because every child deserves a future filled with hope and possibility.

Join the Fight Today!
Donate now, spread the word, and be part of the movement to end Duchenne Muscular Dystrophy and lets be the heroes of Alparas and Osman by getting the medicine they need so that they can have the chance to lead longer, fuller lives.
Let’s fight together—because every child deserves a future filled with hope and possibility.

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    Co-organizers (4)

    atilla ustun
    Organizer
    England
    atilla ustun
    Co-organizer
    murat sukru acar
    Co-organizer
    Nuray Caglar Tunc
    Co-organizer
    Nuray Caglar Tunc
    Co-organizer

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