Ally's Army of Angels

Ally is a 5 year old girl living with Costello Syndrome.  This syndrome affects only 300 people worldwide.  
 
Costello Syndrome complications:

* Failure to Thrive
 *Short Stature
 *Developmental Delay
 *Intellectual Disability
 *Orthopedic abnormalities
 *Neurological abnormalities/Conditions
 *Heart Issues: Cardiomyopathy, congenital    heart defects, arrhythmias and more
 *1 in 5 children with Costello develop one of two aggressive childhood cancers: Rhabdomyosarcoma and Neuroblastoma

Because of the rarity of this syndrome, there are only a handful of doctors that specialize in this syndrome and support us.  We don't have large national sponsors, grants or donations funding research and delevlopment.  It is only the families of these rare people raising money to try to increase their quality of life as well as life expectancy.

Ally is raising money to attend the next Costello Conference in Orlando, FL.  This conference is held every 2 years and is the main venue for supporting this syndrome. 

The opportunity to attend the conference provides the following:

 I attend classes and meetings with the doctors working on Costello Syndrome. They advise us about the newest developments, treatments and preventative measures.

 Ally takes part in physical tests with these doctors to help advance research and development.

 Ally is able to join a group of other children that are just like her.

Please support Ally and her Costello Family.