I’m here to share a story, one that is not my own, but has become a deep matter of my heart.
Meet baby Rylee and her mama Amie.
Baby Rylee was born with traumatic brain injury known as ‘HIE’ which is caused by a lack of Oxygen getting to the brain. This has left Rylee in a very vulnerable position. In her first weeks of life she would experience a series of seizures, up to 200 a day, and a grim diagnosis. What Amie and Logan had to endure in those first months of Rylees life would be any parents worst fears.
Despite the doubt from the medical world that Rylee would get to a place where her brain would start to make connections and thrive, Amie and Logan didn’t give up.
After months in the NICU and countless procedures they found ways to reduce her seizures and get their baby girl back in their arms at home where she belonged, reaching milestone after milestone.
However this road to recovery is long and with many obstacles as Rylee's body has to make adjustments to the treatments she faces, endure test after test, diagnosis after diagnosis, is in and out of hospital, clinics, therapies, and undergoes daily testing and she is not yet even one.
Just in the next year Rylee and her family face:
Corrective eye surgery
Being fitted for walkers
Being taken off the KETO diet (which although worked wonders has caused complications)
Surgery for her hernia
Her Cerebral Palsy Diagnosis
As well as Amie leaving her job, so staying home full time to care for Rylee.
In my conversations with Amie, she told me they have found a therapy center called NAPA, a world renowned therapy center dedicated to children with unique and specific needs. This is a place Rylee can go to receive therapy and care that will equate to years in just a 3 week time frame, but this like many of the other things this family faces comes at a great expense.
It’s Rylee’s first birthday on December 15th, and so I am starting this GOFUND me to raise money to get Rylee to NAPA and support her family in the process.
So as her first birthday approaches I hope you will help get her to NAPA, and show her that she has a village of support from around the world. Sometimes the smallest actions can make the biggest impact. Whatever amount you could offer or even just sharing this with your community could make a huge impact on this family's journey!
You can learn more about Rylee, Amie and Logan and their story
I hope we can build a world in which our babies know they are never alone, that there is a village out there who will build a net no matter how far and wide we are spread.
Thank You for taking the time, and as the great David Attenborough once said:
- A species can thrive only when everything else around it thrives too.
I have also written a longer version of how I came to know this family and why Rylee has reached my heart in such a way. You can find it here.
- Nikki Lister
- Stacey Browne
- Christine Stock
- Anna Goater
Fundraising team (3)
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