Our names are Michelle and Meg. We've been friends with Jamie since elementary days. 2017 proved to be one of the toughest years for her and her husband Jeremy. 2018 has been even harder for them. Both of their children suffer from a mitochondrial disease labeled as P.O.L.G. They have spent numerous hours in and out of hospitals and doctors offices. Jamie is often on the phone with the insurance company having to fight to get them to cover medications that her children need. Medications that can cost hundreds of dollars.
On Wednesday morning Jamie woke up and went to work. Shortly after getting there she received a FaceTime message from her husband and text message asking her to answer her FaceTime. With no service in her office Jamie ran outside to FaceTime with her husband. Jeremy stated that something seemed off with Bryce and put the camera on him. Jamie noticed immediately that Bryce's eye was twitching. She then witnessed her sons little body go into complete convulsions. She hung up with her husband so he could call 911. Jamie rushed to the hospital to see that her son was still having a very severe seizure. After 2 hours of trying to get his vitals stable Bryce was transferred to Boston Children's Hospital all the while still seizuring and pretty intensely. Bryce went on to seizure for 20 hours. To get the seizures to stop the doctors put Bryce into a medically induced coma.
Jamie's latest update stated that Bryce was still in the coma. He's on a lot of medications. Bryce is hooked up to a breathing tube and a feeding tube. They had Bryce baptized in the hospital and said it was beautiful.
It could be a few days before he wakes up. The concern of what the 20 hour seizure has done to his little body is the biggest concern for them right now and there's no way to know that until he wakes up. There's also the concern of what happens when they start weening him off of the anti-seizure medications.
If there has ever been a family who needs our prayers and support more it's Jamie, Jeremy and Aubriella as well as their extended family. They are currently staying at a hotel in Boston near Children's though Jamie has been sleeping on a small bed behind Bryce in the ICU.
They are not out of the woods yet. There will be lot's of missed work and lot's of time away from home. Together, if we could raise funds to make that one less thing they have to worry about then let's stand together and support this family! Never have they needed friends, family and community more than now!
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