Hi! We are Ashleigh and Kerry - parents to Kaitlyn and Arthur! Kaitlyn is 6 and the best big sister. Arthur is 1 year and 8 months old. Arthur has a complex medical situation which is going to be life limiting to him. He has a rare genetic condition called Galloway Mowat Syndrome - this impacts his brain, development, kidneys and his eyes. He suffers from seizures. He has very low tone which means he is unable to hold his own head up, sit up etc.

In spite of the challenges he faces he is the happiest and snuggliest little soul.

Our aim is to raise money to ensure that he has the best and most comfortable quality of life as possible all while making as many memories together as a family! Our first aim is to get a specialised car seat which will enable us to travel as a family - his current seat is not suitable and he gets very distressed. Our longer term aim is to get a wheel chair accessible vehicle.