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Aliviando el Dolor de Alis Mariangel Sanz Sosa

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Hola a todos mi nombre es Alis Mariangel Sanz Sosa de 13 años de edad de Caracas Venezuela soy paciente con condiciones especiales, tales como Parálisis cerebral infantil cuadriplegica espatica, distonica, en uno de mis controles médicos con Neuro-Ortopedia, mi Dr se da cuenta que tengo un problema de desviación de columna lo cual me refiere con urgencia a servicio de columna el cual al verme me hicieron estudios especiales de Rx con contrastes, en el cual el resultado dió que tengo una escoliosis la cual debe ser intervenida quirúrgicamente mi madre acudió a hospitales públicos pero no hay hospital público con dicho servicio, obligandome acudir a el hospital ortopedico infantil dónde se realizará cura operatoria de escoliosis por vía posterior mediante osteotomias, múltiples artrodesis vertebral posterior instrumentada con sistema tipo ZEUS CON 03 BARRAS Y 03 CONECTORES DE PROXIMIDAD+60CC DE INJERTO ÓSEO SINTETICO por vía posterior, a la mayor brevedad posible, para prevenir mayor progresión de la curva que condicione un problema restrictivo pulmonar.
En venezuela lamentablemente no cuento con los recursos suficientes para dichos procedimientos medicos hoy pido ayuda para mi hija Dios los bendiga a todos.
Cada donación, por pequeña que sea, nos acerca un paso más a poder ayudar a mi hija.

Hello everyone, my name is Alis Mariangel Sanz Sosa, a 13-year-old from Caracas, Venezuela. I am a patient with special conditions, including spastic quadriplegic cerebral palsy and dystonia. During one of my medical check-ups with Neuro-Orthopedics, my doctor noticed a problem with my spinal curvature. I was urgently referred to the spinal service, where I underwent specialized studies including contrasted X-rays. The results revealed that I have scoliosis that requires surgical intervention.

My mother sought help from public hospitals, but unfortunately, there is no public hospital with the necessary services. This situation has led us to the Children's Orthopedic Hospital, where they are planning to perform corrective surgery for my scoliosis. The procedure will involve posterior spinal osteotomies, multiple instrumented vertebral fusions using the ZEUS system with 03 rods and 03 proximity connectors, along with the use of 60cc of synthetic bone graft via a posterior approach. This surgery is crucial to prevent further progression of the curvature, which could lead to restrictive lung problems.

Regrettably, I do not have the necessary resources for these medical procedures in Venezuela. Today, I am humbly reaching out to ask for help for my daughter. May God bless each and every one of you. Every donation, no matter how small, brings us one step closer to being able to assist my daughter.


Organizer

lisbeth sosa
Organizer
College Point, NY

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