"I can't even imagine"
Words so often that I'm told
Yet we live it everyday
Filled with courage oh so bold
But even mountains break asunder
When the ground underneath them shakes
What are we but human
When the world around us breaks...
In honour of our beloved baby girl, Alisha Noor Jilani, who passed away this day last week, we are raising funds to ease the suffering of others going through the journey of childhood cancer treatment.
How You Can Help
This is an evolving campaign and the goal is to support each of the organizations that helped support us during our time of need.
The first and current campaign is focusing on sponsoring a room at the Ronald McDonald House (RMH) so we can support other families that need to move away from their homes to get treatment for their child. The qualification for a commitment at RMH London is $5000.
Once the goal for this campaign is achieved, we will move on to our second campaign to raise funds for ChildCan, followed by our third campaign for Camp Ooch.
Learn more about The Alisha Jilani Foundation below:
In May 2019, shortly after her first birthday, Alisha was diagnosed with a rare and aggressive brain cancer called ATRT. For her treatment, we moved from our home in London ON to Toronto for six months and stayed at the Ronald McDonald House, which was an invaluable resource for us. During her treatment at SickKids hospital, Alisha underwent numerous brain surgeries and some of the harshest chemo regiments that can be administered on children, including high-dose chemo and bone marrow transplant. In December 2019, her treatment at SickKids came to an end and we came back home.
Two weeks later, her tumour came back.
This time, Alisha's treatment resumed at London's Children's Hospital. Alisha was happiest at home and all efforts were directed to ensure that we, as her parents, were equipped to manage her care whenever she wasn't going through active chemo treatment in hospital. Despite this, she needed blood transfusions once a week, every week, for six months. As COVID19 gripped the world, hospitals became an incredibly isolating experience.
Our little soldier fought on through thick and thin but the course of treatment eventually took a toll on her little body and she passed away shortly after her second birthday.
Her fighting spirit however lives on in the impact she's had on the countless people who heard about her journey.
This Foundation will be her Legacy.
Alisha Noor Jilani (May 4, 2018 - June 2, 2020)
Our Mission and Vision
1. Financial Support - our goal is to support three existing organizations that took care of all the little details that would have caused us incredible financial and emotional stress: Ronald McDonald House (RMH), ChildCan, and Camp Ooch. RMH took care of our housing and became our home away from home. ChildCan assumed care for everything else — from parking and meals to mortgage support and funeral costs. Lastly, Camp Ooch created a supportive environment for Alisha’s big sister, Inaya, where she felt welcomed and understood.
2. Blood - for those that cannot give financially, please consider donating blood. Chemotherapy leaves the body unable to produce hemoglobin and platelets on its own. As a result, Alisha needed blood transfusions every week. Please click on this link to let us know if you are interested in donating blood through the Canadian Blood Services in Alisha's memory.
3. Time - in the post-COVID world, hospitals have become incredibly isolating. Only one parent was allowed in hospital with Alisha at a time and each parent could only switch out every 24 hours. With no visitors allowed, hospitals became an incredibly lonely place for both patients like Alisha and parents like ourselves. Through the Alisha Jilani Foundation, we will be working to improve the mental health of patients and parents through initiatives that decrease feelings of isolation and empowering parents to be at home with their child whenever medically possible.
- Zaineb Survery