Help for Lil Sal
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This page is for Salvador Reina Jr. aka Lil'Sal. He is 13 years old and has been living with Pulmonary Hypertension.
This makes it difficult for him to do the simple things a kid should enjoy doing.
He had open heart surgery in 2006 and countless hospital visits, surgeries and medications. The Doctors have him on a long list of pills… once a day he takes Adcirca, Montelukast, Letairis, Cetirizine, and twice a day Furosemide and Ranitidine. For pain he is prescribed Gabapentin and switches from Tylenol and Ibuprofen. When he’s on an airplane he needs to use oxygen, and every night when he sleeps.
His mom has been trained on how to properly attach a subcutaneous injection site. It delivers Remodulin into the the skin, 24/7 the site has to be attached to his belly area. Lil’Sal says that this is very painful at times, he gets bruised from it and sometimes when it falls out his parents struggle with him to put it back in him. If the machine runs out or stops he has only two hours until the medication is completely out of his body.
Lil’Sal and his family live in Nevada and have to take trips to Lucile Packard Hospital at Stanford in Northern California to visit special doctors. The hospital helps a little ex: $50 gas card and sometimes help with paying for the hotel. Last year the trip cost them $500 in gas alone out of pocket.
Having 4 boys with one parent working fulltime would be difficult for many families, but to have one of your sons dealing with this, with limited rescores and income would be next to impossible without people who care. We welcome all types of help… other families that can relate to us, encouragement, food for the trip, money for medical expenses, other doctors who might have helpful information, alternative medications, treatments and last but not least LOVE!!!!!!!
Salvador needs to be seen at Lucile Packard every three months now. Each trip can vary with hotel stay, food and gas. It depends on how long he must stay. Dad has to use vacation time to take him.
Help is always welcome.
His mother has a Facebook where she keeps us updated on what’s going on with her and the boys. We linked it to her profile for you to view, leave love and stay updated on Lil'Sal. Currently there is no cure for Pulmonary Hypertension. I ask that everyone continue to keep him in your daily prayers.
https://www.facebook.com/martinezreina?fref=ts
We’ll keep you updated on his visits and his health from time to time.
Thank you for taking time to read this!!!!!
Please Share.
♥
This makes it difficult for him to do the simple things a kid should enjoy doing.
He had open heart surgery in 2006 and countless hospital visits, surgeries and medications. The Doctors have him on a long list of pills… once a day he takes Adcirca, Montelukast, Letairis, Cetirizine, and twice a day Furosemide and Ranitidine. For pain he is prescribed Gabapentin and switches from Tylenol and Ibuprofen. When he’s on an airplane he needs to use oxygen, and every night when he sleeps.
His mom has been trained on how to properly attach a subcutaneous injection site. It delivers Remodulin into the the skin, 24/7 the site has to be attached to his belly area. Lil’Sal says that this is very painful at times, he gets bruised from it and sometimes when it falls out his parents struggle with him to put it back in him. If the machine runs out or stops he has only two hours until the medication is completely out of his body.
Lil’Sal and his family live in Nevada and have to take trips to Lucile Packard Hospital at Stanford in Northern California to visit special doctors. The hospital helps a little ex: $50 gas card and sometimes help with paying for the hotel. Last year the trip cost them $500 in gas alone out of pocket.
Having 4 boys with one parent working fulltime would be difficult for many families, but to have one of your sons dealing with this, with limited rescores and income would be next to impossible without people who care. We welcome all types of help… other families that can relate to us, encouragement, food for the trip, money for medical expenses, other doctors who might have helpful information, alternative medications, treatments and last but not least LOVE!!!!!!!
Salvador needs to be seen at Lucile Packard every three months now. Each trip can vary with hotel stay, food and gas. It depends on how long he must stay. Dad has to use vacation time to take him.
Help is always welcome.
His mother has a Facebook where she keeps us updated on what’s going on with her and the boys. We linked it to her profile for you to view, leave love and stay updated on Lil'Sal. Currently there is no cure for Pulmonary Hypertension. I ask that everyone continue to keep him in your daily prayers.
https://www.facebook.com/martinezreina?fref=ts
We’ll keep you updated on his visits and his health from time to time.
Thank you for taking time to read this!!!!!
Please Share.
♥
Organizer
Jessica Reina
Organizer
Gardnerville Ranchos, NV
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