Help Alexys attend CHARGE Syndrome Conference

Meet Alexys, a 14 year old girl with CHARGE Syndrome. She is a bright, smart and loving girl who loves spending time with friends and family. CHARGE Syndone is a very rare and complex disease that affects many different parts of body, including hearing and vision loss, lung, heart and GI issues as well as developmental delays.

Alexys, her family and myself,as her caregiver, plan to attend the International Biennial CHARGE Syndrome conference in Orlando, Florida in July.

This is a wonderful opportunity for families and caregivers to connect with each other and learn about the latest research and treatments. Alexys will have the chance to learn more about her Syndrome and connect with other CHARGE kids. It's a chance to feel supported and understood and to build new friendships.

We are asking for your help in paying for incidentals and extra expenses like lodging, travel, some entertainment and meals.

Any donation will go a long way in helping Alexys and her family have the best experience possible!

Thank you for your kindness and support,

Alexys and family