Alexis' Life Changing Surgery

Alexis was born with a small purplish area in the corner of her mouth, bottom lip, and on her tongue. As she grew it got bigger. When she was 5 weeks old, a biopsy was performed inside her cheek at Riley Hospital. It was determined it is a venous vascular malformation, inside her cheek, lip, tongue, and airway.  To date, she has had 47 surgeries at Riley! The surgeries are repeated every 2 months because the malformation continues to grow as she does and is considered life threatening being in her airway. It also affects her speech. It is a VERY painful surgery because they inject a type of acid into the veins. It's only to shrink the veins because the entire malformation cannot be removed. BUT recently, a new more permanent surgery using medical grade super glue was discovered at Seattle Children's Hospital - which will be life changing for Alexis. Her insurance has FINALLY approved the procedure, so now I'm trying to help Alexis and her mother figure out how to get there and sustain financially for 2+ weeks. We are talking airplane tickets, car rental, and food for that amount of time, plus lost wages that Erin will not be able to work. Without this surgery, Alexis will continue to have repeated surgeries for the rest of her life. This new surgery could mean an entirely new life for Alexis. This fund was set up for family and friends of the family to donate, but even if you don't know Alexis and want to help, please know any and all donations are appreciated so very much! Thank you for taking the time to read Alexis' story.  :)

Please read newest update for latest information - she is getting ready to have her 3rd surgery at Seattle Children's Hospital.