Alexis Stanley and Family

My name is Steven Stanley and I am the father of Alexis Stanley. Alexis was diagnosed at age 13 with Myasthenia-Gravis, which is a rare autoimmune disease with no cure. there is medicine that helps with symptoms. She has had Thymectimy surgery, tried Rutuxymab,IVIG,Imuran,finally in June 2016 we tried Hyzentra a subcu treatment and from June till Dec she was wonderful back into dance class and living like a normal child. Then we had to switch insurance in 2017 and they denied her treatment, calling it a trial drug. After 5 months of appeals the state overturned denial and allowed her to take treatments again. The drug wouldn't work anymore. So we have had a really rough last few months. In December we spent 10 days in hospital and they started her on Plasma exchange,got her home for Christmas and things were looking good, then she caught flu, and ended back in hospital, got through that then her central line got infected, and back to hospital. infection was causing extreme weakness and they changed her antibiotic to make sure it wasn't cause of weakness. then she had an allergic reaction to new antibiotic and back to hospital again. We have spent at least 27 days in hospital since Dec.12,and I am self employed and have missed that much work, so our bills are piling up and we are behind on mortgage. We have tried other means of financial help and have been denied. We are stressing out over this instead of being strong for our daughter which is more important. The money will help us get caught back up on bills and be there mentally to support our daughter.

Donations

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  • Taylor Nelson  
    • $40 
    • 36 mos
  • Ian Leas 
    • $20 
    • 36 mos
  • Kristin Young  
    • $20 
    • 37 mos
  • Anonymous 
    • $20 
    • 37 mos
  • Amber Wilkins 
    • $25 
    • 38 mos
See all

Organizer

Steven Lee Stanley 
Organizer
Plattsmouth, NE
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