Alexa’s Alopecia Battle

We are devastated to share that Alexa, our 10-year-old daughter, is losing all of her hair due to an autoimmune disease called Alopecia Universalis. Alexa has a very aggressive case of Alopecia, which caused her to lose almost all of her hair over her entire body in less than 2 months.

Alexa wants to live a normal life. She is a straight-A student who loves her family, friends, art, Girl Scouts, and cheerleading. We know the best way to provide her with some normalcy is by purchasing a high-quality (high-cost), custom-made cranial prosthesis that she can wear without worry.

Unfortunately, many insurance companies, ours included, do not provide coverage for cranial prostheses or the other treatments that Alopecia patients require.

Since we cannot rely on assistance from insurance we are raising money to purchase her a custom cranial prosthesis and also to help pay for the other non-covered treatments and procedures that she may require over the next few months.

We did apply for a cranial prosthesis through Wigs for Kids. On Tuesday, we were approved; however, it can take 6 months to a year for the cranial prosthesis to be ready.

Alopecia is unpredictable and we do not know if Alexa will ever be able to regrow her hair. Many Alopecia sufferers never do. A cranial prosthesis, however, can make alopecia much easier to live with on a day-to-day basis.

Thank you for your support during this difficult time. It means the world to us!