Alexandra’s Neurological Lyme treatment

As some closest to us may know, my daughter, Alexandra, has been suffering from an—until recently—undiagnosed illness for nearly two years. In that time, she has experienced extreme difficulty walking, frequent seizures, severe head/eye pain, reduced vision, fatigue, cognitive/memory difficulty, and an inability to stand upright. The condition has been, in short, utterly debilitating for Alex, and for our family.

Thankfully, she has finally been officially diagnosed with Advanced Neurological Lyme disease (also known as Tertiary Lyme or Neuroborreliosis) and POTs (Postural Tachycardia Syndrome). This diagnosis was made by a renowned Lyme expert MD in New York. Though Alex’s illness is in its most advanced stages, a treatment plan has been devised in the hope that Alex’s symptoms can be improved and her pain can be lessened.

Unfortunately, most of the treatment is not covered by OHIP or insurance, including that which will take place in Canada, as Lyme treatment, awareness, and diagnosis in our country is severely lacking. It is estimated that future effective treatment will cost thousands of dollars more, on top of that which we have spent searching for diagnosis/treatment.

In late December, Alex will have a semi-permanent IV picc line placed in her arm, and we will begin daily intravenous antibiotic treatment in the new year, to start. We hope that this will be the first step to returning her to her former, healthy self.

Anything you can donate to the process would greatly help ease the financial burden this experience has placed upon our family, so that we may focus on Alex's health. For those who cannot donate, prayers and shares are appreciated.

Thank you for reading, and for your compassion during this difficult time.

Natalie