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Albany Hernandez is 11 years old living in Los Teques, Venezuela and suffers from Cystic Fibrosis.
This disease does not have a cure. It is an inherited life-threatening disorder that damages the lungs and digestive system. Cystic Fibrosis affects the cells that produce mucus, sweat, and digestive juices. It causes these fluids to become thick and sticky. They then plug up tubes, ducts and passage ways.
Symptoms vary and can include cough, repeated lung infections, inability to gain weight, and fatty stools. Early signs of CF include: Salty sweat; many parents notice a salty taste when kissing their child. Poor growth and weight gain (failure to thrive). Constant coughing and wheezing.
This Go-Fund-Me has been created in an effort to help Albany Hernandez to address the medical and nutritional needs she is lacking in the country of Venezuela. Due to the present conditions in Venezuela she cannot get the nutrition required by her condition.
The medical staff tries to do the best they can but for the most part lack the latest knowledge to address the disease.
The medicine is hard to come by and at times none existent. The cost of the medicine is at times prohibitive.
When she has to be hospitalized to address the disease the hospitals do not have food. The parents have to cook and bring the good to their children. The mothers are forced to sleep on the floor; the facilities do not provide a recliner or any accommodation for the parents.
Albany has been given a diet to help her gain weight but unfortunately all the food recommended by Nutritionist in Argentina.
We are trying to provide this food by purchasing it in the USA and shipping it to Venezuela. It is very important that she receive the nutrients to help her gain sufficient weight to allow the doctors to prescribe the full dose. Presently her weight is not sufficient to prescribe the complete dose of the medicines therefore she is not benefiting as expected.
Attached is a video where Albany explains in her own words the disease and her coping with the life she leads.
She mentions that she would like to be able to walk out and feel the rain hit her face. Of course she can’t do that. She can’t be out at night or even experience a cold morning. She will cough profusely to the point it causes her to vomit.
We are looking for your cooperation so we may assist her with the multiple needs that she faces. Please contribute with as little or as much as you feel comfortable giving.
Any amount is most appreciated and will contribute to her well being. Her mother would like to have Albany visit the USA and get the latest treatment available to children suffering Cystic Fibrosis.
This disease does not have a cure. It is an inherited life-threatening disorder that damages the lungs and digestive system. Cystic Fibrosis affects the cells that produce mucus, sweat, and digestive juices. It causes these fluids to become thick and sticky. They then plug up tubes, ducts and passage ways.
Symptoms vary and can include cough, repeated lung infections, inability to gain weight, and fatty stools. Early signs of CF include: Salty sweat; many parents notice a salty taste when kissing their child. Poor growth and weight gain (failure to thrive). Constant coughing and wheezing.
This Go-Fund-Me has been created in an effort to help Albany Hernandez to address the medical and nutritional needs she is lacking in the country of Venezuela. Due to the present conditions in Venezuela she cannot get the nutrition required by her condition.
The medical staff tries to do the best they can but for the most part lack the latest knowledge to address the disease.
The medicine is hard to come by and at times none existent. The cost of the medicine is at times prohibitive.
When she has to be hospitalized to address the disease the hospitals do not have food. The parents have to cook and bring the good to their children. The mothers are forced to sleep on the floor; the facilities do not provide a recliner or any accommodation for the parents.
Albany has been given a diet to help her gain weight but unfortunately all the food recommended by Nutritionist in Argentina.
We are trying to provide this food by purchasing it in the USA and shipping it to Venezuela. It is very important that she receive the nutrients to help her gain sufficient weight to allow the doctors to prescribe the full dose. Presently her weight is not sufficient to prescribe the complete dose of the medicines therefore she is not benefiting as expected.
Attached is a video where Albany explains in her own words the disease and her coping with the life she leads.
She mentions that she would like to be able to walk out and feel the rain hit her face. Of course she can’t do that. She can’t be out at night or even experience a cold morning. She will cough profusely to the point it causes her to vomit.
We are looking for your cooperation so we may assist her with the multiple needs that she faces. Please contribute with as little or as much as you feel comfortable giving.
Any amount is most appreciated and will contribute to her well being. Her mother would like to have Albany visit the USA and get the latest treatment available to children suffering Cystic Fibrosis.