Everyone who knows Akiane, knows how special she is. However she was born with a rare genetic disorder (Leri-Weill Dyschondrosteosis). She is growing up strong and healthy after everything she has battled through. The disorder is not life threatening, but she still needs to be seen by a specialist in the United States. Everyone close to the family knows the situation that they went through through, and why they moved to Colombia. The family needs our support to bring her back for a few months while a specialist takes a look at Akiane.