Triumph for Tomas

Tomas has Pelizaeus Merzbacher Disease. It's a rare genetic condition where the fatty tissue of his brain didn't grow.

PMD can affect vision, hearing, communication, motor skills and intellectual ability

PMD can also cause those with the extreme form to die before they reach adolescence.

There is currently NO charity for PMD in the UK
OUR MISSION IS To become a registered charity to help raise awareness of PMD and to create a fund for people to use to buy special equipment and toys.

In the future we also hope to be able to provide equipment in public places which make family days out more accessible and fun.

And possibly set up a helpline for those struggling with disabilty and it's challenges as well as offering help with bereveament.

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  • Alex Kelly 
    • £5 
    • 54 mos
  • Alex Kelly 
    • £50 
    • 54 mos
  • Astrid Johanna Helene Foster 
    • £50 
    • 68 mos
  • Ian Harrington 
    • £30 
    • 68 mos
  • Anonymous 
    • £30 
    • 68 mos
See all

Organizer

Emma Louise Stewart 
Organizer
Chatham, South East England, United Kingdom
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