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Dear Readers
My name is Treshann Roberts. I'm 34 yrs old, and I've been living with Huntington's disease for the past 12 years. This progressive illness affects my speech, vision and mobility. Sadly, am not the first in my to face it- my grandfather,dad, aunt and uncle all passed away from Huntington's. But while they experiencing symptoms in their 50s. I was diagnosed at just 22. I'm the youngest in my family to receive this diagnosis, and the journey has been incredibly difficult.
I live with my 62- years old mother and my 8-years old daughter. Because of my limited mobility, I rarely leave the house. Simple daily tasks- like using the bathroom, taking a shower, or moving around-requires assistance. Our home is set back from road, and to get me there, someone has to literally carry me on their back.
The hardest part of this illness isn't just the physical pain-its the emotional weight of not being able to care for my daughter the way I want to. She's bright, loving, and full of energy. I want so badly to be present in her life, to attend her school events, to cook for her, to be the mom she deserves. But my body often doesn't allow it. There have bèen heartbreaking moments- like the time i fell, hit my head, and bleed from my nose while she stood there terrified and unsure of what to do. These are moments no child should have to witness.
We've been trying to build a new room for the two of us over three years now, but because of financial limitations, we've had to put that dream on hold. A donation would mean the world to us. It would help us begin building that space- a safe, comfortable place where i can rest and care for my daughter with dignity,
At night, I often need to wake her to just to help me to the bathroom. I would love to get a remote- controlled wheelchair to regain some independence, but the terrain outside our home is rocky and the room inside are too small. Every day is a struggle. Sometimes, I don't make it to the bathroom in time, and I lose another small piece of my dignity.
Growing up, I watched my father living with Huntington's for 20 years, and now I understand just how hard it was him. The loss of independence, the daily pain,and most of all-the sadness of watching your child worry about you. When you just want to be their protector.
Thanks you for taking the time to read my story. Any support you can give- whether through a donation, sharing my story,or simply offering encouragement- means more than I can express. You're helping me fight for more than comfort- you're helping me fight for time,dignity,and memories with my daughter.
With gratitude,
Treshann Roberts




