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Aid Layla in Overcoming Lyme's Challenge

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Layla Love is on the cusp of what promises to be a life-changing series of treatments and we are excited that there is finally a diagnosis that seems to explain so many of the difficult health symptoms she has experienced for years!

Layla has experienced a life of physical pain and has always managed to deal with it and move forward with a life of art and service to mankind. She was diagnosed with Childhood Onset Parkinson’s disease at age 11 and was treated using the medicine called Sinemet. That gave her about 10 years of good health before the side-effects caused serious issues. With many ups and downs she pushes through and crafted a life in art and activism.

For the past few years, she has had to sleep 12 – 14 hours a day due to very low energy and has constant physical pain in movement. She has gone to doctor after doctor for years and has paid for a whole range of medicines and supplements to help her function and get her work done. Recently, when visiting a clinic in California, a doctor looked at all her symptoms and ran tests for the bacteria that causes Lyme’s disease. The result showed that she has three of the four bacteria known to cause this disease. It was a shocking but vitally important discovery! This clinic has a treatment of specifically developed gene silencing therapy called Supportive Oligonucleotide Therapy (SOT) that has proven to eliminate the bacteria.

Layla sold several pieces of her art recently and was able to pay for the basic SOT treatment and she is in the midst of this now. The initial effects of this treatment are difficult, and she has even less energy and is struggling to get by on a day-to-day basis. The doctor has highly recommended that Layla get a series of complementary treatments that will both improve the performance of the SOT process and help build her body up so that she can better focus on her work.

She has no money left for these treatments and since she is now having the SOT injections, it is a critical time to get these vital, health enhancing treatments. Since the doctor has identified the root cause of the crushing fatigue and pain (these are not symptoms related to the hereditary dystonia condition), Layla is on the cusp of being able to fully function and get back to her advocacy work – a large collaboration project called Reef Revival!

We are asking for your generous support to allow Layla to get the full battery of treatments and cover some of her expenses while she deals with the pain and fatigue she is experiencing now. We know that the state of the world is topsy-turvy these days and times are hard for many people. Your donation would be an act of kindness and understanding that this is, indeed, a true moment of transition for Layla. She has so much to offer, so much talent and we want to give her the wings of a functional body so that she can soar again!
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    Organizer

    William Apter
    Organizer
    North Kensington, MD

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