My name is Taylor and currently I am humbled to be asking for help. I really hate reaching out and asking for help especially financially, but it's gotten to a point where we're desperate. I have applied for all government aid we can, and have been denied or are waiting on a court hearing for disability which aren't until next year at the earliest even though I've been waiting for 4 years. They cannot tell me why we're being denied because we meet the criteria, so they just keep "escalating" and it never gets resolved.
As many know I had my son back in December only about 5 months ago. Being disabled while pregnant was not an easy task. I would lose consciousness multiple times a week and lost the ability to drive at the end of the 2nd trimester. My immune system was the lowest it has ever been as being pregnant takes away from your IG levels and I am already immunocompromised. My husband had to take off a lot of work in order to support me throughout. I had to be induced at 38 weeks for the safety of me and my son, but it resulted in a C-Section
When I had my son, I was very excited to get back to my version of normal. Still disabled, but not struggling as much. Shortly after, I became very ill. I was sent home from the ER 3 times for "over thinking" things and that the pain and agony I was in was normal for someone who just recently had a C-Section. I kept feeling worse. The pain I was in was 10x worse than the unmedicated, pitocin induced contractions. I kept running fevers and finally I hit 105.8. Turns out the C-Section resulted in HA-MRSA from TGH. I will not go into details as to why I know this to be the for the sake of legality, but there are reasons and evidence behind this. It took over my body. Sepsis and shock. I had to have a drain, a wound vac, another c-section, and a long course of IV antibiotics. I couldn't walk for weeks. I couldn't hold my own son for the 2nd week of his life and his first Christmas with us. A time that was supposed to be magical was ruined. Stolen from me. I was unable to care for my son alone for months.
I returned in February with another MRSA infection in the C-Section wound once again. Fluid had built up around my lungs to where I couldn't breathe. Turns out I have heart failure from the sepsis.
The way I was treated at both TGH and the hospital for MRSA and heart failure was completely unacceptable beyond words. Once again, I will not be going into detail because of legality, but it was unbelievable. I am now on a ton of daily medication for both physical and mental health. I struggle to sleep at night. I envision and relive the experience over and over again all night. I cannot sleep in my own bedroom because of the memories in there. There are days I can barely function. I've gone days without sleeping from the PTSD it has resulted in. I cannot get IVs or bloodwork without feeling like I am about to pass out when I have to get infusions every 28 days. I was already disabled before this, and now it's worse. To try and care for an almost 5 month old which struggling to care for myself and the house has been demanding to say the least.
My wonderful husband, Tyler has had to take off many weeks extra off work. He is doing his best to balance work and life together. We have had savings and family help which has been such a blessing, but I am still healing. My mental health has taken a decline in the past month. I love life and I love my family and my son, but having to choose between skipping meals to afford a day off versus struggling to keep afloat while caring for myself, my son, and my home is a daily struggle.
On top of it, all of our cars have broken down multiple times. It's costed us well over $2,000 in just under a year. Medications have gone up in price, my son got MRSA and had to be seen in the ER. My providers are becoming out of network with my insurance and we're trying to balance finding new doctors and paying out of pocket. Forms and legal funds are expensive. Our animals have needed vet visits. My son has to be on Nutramagin which is a very expensive formula. He is getting ready to crawl and we have to baby proof still. We still have to find a way to travel 6 hours north for healthcare from a specialty hospital for 2 weeks, but cannot find the time nor funds to do so. My husband has had some medical bills pile up and we still owe for my son's birth. Let alone the gas prices spiking, as I'm sure we've all felt, while I have 7 appointments an hour away each a week on average.
I know there are so many out there who struggle and have things they have to take care of. I do not like asking for help especially financially. This is extremely hard and vulnerable for me, but it comes to a point where we need the help. Of course there is never any pressure to donate, but even sharing with your friends or family goes a long way. I love living and everyone around me, I just would like it to be a little easier to do so.






