Thank you so much for your help.
Brothers with Batten's - facebook page
www.bdsra.org - information about Batten Disease
Batten Disease is not contagious or, at this time, preventable.
Over time, affected children suffer: mental impairment, worsening seizures and progressive loss of sight and motor skills.
Eventually, children with Batten Disease become blind, bedridden and unable to communicate.
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