Help Me Get To Mayo!!!

I just want to start out by saying this has been so hard for me to do but I realize I am not super woman as much as I like to think I am and asking for help is not one of the things I like to do but sometimes I have too.. as many of you know I have been very sick for over a year now. And for those of you who don't know I will fill you in. This may be a little lengthy. It all started in September 2015, I came home one day feeling like I had been ran over by a Truck, had been having bronchial spasms all day. So I left the shop went straight home to my bed, by 7:00 that night I couldn't lift my head off my pillow, around 8:00 my oldest child, Brandon, came to check on me and realized I wasn't talking right and was not breathing good so he called his best friends mom to come to the house. He saved my life that night! Brooke and Angie loaded me up in the car and off to St Dominics we headed. When I got there I was septic, had 104.3 temp, oxygen level was 72%, blood pressure was out of the roof, my sugar was over 500, and I had pneumonia in all 5 lobes including all the little alveolus in the lungs were all clogged with pneumonia. It's a wonder I was alive at this point, all I remember was waking up 2 days or so later in ICU on 80% oxygen and the past few days were a big blur. I spent over a week in ICU and then a week in the unit. They did several ct-scans and X-rays everyday to see if there was any progress. I had to do physical therapy and occupational therapy for 3-4 days to get enough strength to be able to go home. Dr Middleton(pulmonary dr) found a very rare pattern in the ct-scans, triangular shaped pattern which he thought may be a very rare form of pneumonia called " Boops".. so when I was sent home I was sent home in October on oxygen and lots of medicine, one being high doses of prednisone. Prednisone was the " only" treatment for this " boops". We thought I was getting better only to have a set back in November, a relapse of the "boops" it appeared bc the ct-scan and X-rays in November were a carbon copy of the same X-rays in September/ October. I spent another week in hospital and again went home on oxygen and high doses of prednisone. Since then I had relapsed 2 more times, so In December Dr Middleton decided to do a lung biopsy( bronchial scope) to find out what exactly this was in my lungs. After the scope we realized I had been exposed to black mold which settled in my lungs along with strep and 2 other types of fungus which caused this monster "boops" to take over my life. However we did not know this until I had a lung biopsy (bronchoscope) in Dec. I also started seeing Dr Jo Deal around this time and this woman is more precious than words. Between her and NP Linda Brewer they have kept me alive I do believe. I love them both so much and am very thankful for them not giving up on me and doing everything they have known to do to help me.. I have since relapsed several times just about every 4-6 weeks. Just can't get it to go away nor any better. Dr Deal started doing lots of lab work to find that my immune system was completely depleted and I would need to start immunoglobulin infusions to build my immune system back up so I could fight this crazy monster called " boops". Well I have had 37 infusions, I get one every week and still no better, at this point I'm on a triple dose of the infusions which take a toll on me and take several days to get to feeling back some what normal ha ha if I even know what that is anymore. My immune system is still very very low, I relapsed again about 7 weeks ago and can't seem to shake this one. I'm still on oxygen as well and the high doses of prednisone, 100 mg to be exact. The prednisone is causing lots of problem, my diabetes has worsened I am up to 4-5 insulin shots a day plus 2 other meds for the diabetes. I have developed bad diabetic neuropathy in my legs, feet and hands which is very painful. I am very tired and fatigued everyday, I also have developed cataracts in both eyes which was found in March and have caused blurry vision, since then they have gotten worse and I will have to have surgery to correct that as well. After all this being said, Dr Deal has decided to send me to the Mayo Clinic in Rochester Minnesota so I can have a team of doctors to help me and run test there that can't be done here. I found this out Tuesday September 20th 2016 and my appt with them is on October 10th, I will need to fly out on the 9th being my first appt with the pulmonary team will be at 8am Monday morning the 10th. This gives me 17 days to get help to pay for the flights for me and a family member, rooms, food, rental car, and being off work as this will be very costly.. I was told to plan of being there for at least a week. I am so ready to go and have more test done to find out if there is a medicine to help with this or an alternative to taking all the prednisone because the prednisone is causing so so many problems and I have the classic moon face which is quite depressing to say the least. I am just ready to feel better and have my life back. I never really knew how much I had taking for granted and how your life can change in a blink of an eye until the past year. So I am ready and willing to get on a jet plane and head for help!! Now just to find a way, where there's a will there's a way and I know God is in control and he will lead, guide and direct me. With all of this being said, I am asking for help in getting to the Mayo Clinic to make me better, so I can have my life back and be here for my precious boys for a long time! My boys mean the world to me and this past year has been so hard on all of us and I think they are ready to have a healthy mama back too!! Anything will help at this point and it will be much appreciated. So thank you all for taking the time to read this and I also ask for prayer along this journey! I pray the Doctors will know just how to fix me and make me feel whole and healthy again! Falling apart at 37 years old is no fun guys!! Ha ha...
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Organizer

Melissa Cleveland Nelson 
Organizer
Brandon, MS
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