Isaac's Fund

Here is the most recent update to the story Jessica Porter with Denver 7 did on the family- https://www.thedenverchannel.com/news/contact7/contact7-gives/colorado-family-finishes-home-for-son-with-disability-with-help-from-community If you are looking for a tax-deductible donation option, please visit http://www.skylinekiwanis.org/2019/11/15/crane-family-project/

This is a summary of the ongoing remodel that can be shared- 
http://www.skylinekiwanis.org/wp-content/uploads/2019/12/JoyOfContributingToCraneFamilyProject_Final.pdf

Thank you to the Longmont Times-Call for the article on the Crane Family! 
 https://www.timescall.com/2020/01/05/mead-family-building-new-home-for-son-fighting-genetic-disease/


Thank you to Denver 7 ABC for sharing Isaac's story! Here is the link to the story~ https://www.thedenverchannel.com/news/contact7/contact7-gives/colorado-family-is-hoping-to-make-their-home-handicap-accessible-for-son-with-rare-genetic-disorder

 Thank you for visiting our fundraising page. I have created this page in hopes of raising funds for my nephew- 6 year old Isaac Crane and the care and support he and his family will need in the coming months and years. Isaac was diagnosed with Spinal Muscular Atrophy Type 1 (SMA 1) in June, 2014.  I initially started this page within days of Isaac's diagnosis. We were told he may have months or a year. But Isaac has continued to beat the odds doctors laid out for Jenna and Jeremiah. The donations the family has received through this page have been a godsend, allowing Jenna and Jeremiah to focus on Isaac and his big sister, Natalie.  In the beginning we were focused on simple day to day living.  As Isaac grows, it has become necessary to make significant changes to the family home-most importantly, a bathroom that will be large enough for Isaac, his caregivers and his hospital stroller or chair. This is a massive undertaking, starting with a new foundation for the 110 year old home. Jeremiah is taking on much of this project on his own with his construction background, but help is needed both financially and labor-wise to get the family back into the house as soon as possible. They are currently living in a 600 square foot rental while work is being done.

Isaac's story-On Tuesday, June 10, 2014 Isaac suffered an unresponsive episode. His daddy, Jeremiah, revived him. My sister, Jenna, and Jeremiah took Isaac to Children's Hospital where he was diagnosed with Aspiration Pneumonia. Testing began to find the cause of Isaac's low muscle tone, present since birth.

On Monday, June 16, 2014 Jenna and Jeremiah were given the devastating news that Isaac has Spinal Muscular Atrophy Type 1. His muscles will continue to atrophy until he passes away. His parents were told he has a few months, possibly a year. The doctors say he is on the weaker end of Type 1, which is most severe.

Isaac was hospitalized again in September, 2014 with aspiration pneumonia and viruses. He fought through them and came home. He had a permanent feeding button placed in his stomach in December to eliminate the tube feedings through his nose.  He continues to be a happy, brave little boy-always ready with a smile for anyone who is near. He faced another hospitalization in September, 2015, but fought through it with his lion's courage.  

In November, 2016, Isaac began receiving Spinraza-a miracle drug injected into the spine that has stops the progression of SMA and has even given him small movements and the ability to move his thumbs enabling him to control his powerchair and sit in a more upright position. To date, Isaac has had twelve injections.   

At 5 years old, Isaac has already surpassed the dire predictions given by doctors at the time of his diagnosis. This is a miracle and we are truly grateful for the prayers and support Isaac and family have received this past year! He is now in Kindergarten! But day-to-day life continues-bills, groceries, housework, etc. Any amount you are able to donate will be greatly appreciated! Any prayers you can send Isaac, Natalie, Jenna and Jeremiah's way are definitely needed.

For more information on SMA please visit www.fsma.org

Donations

  • Vada Gibbs 
    • $50 
    • 8 d
  • Sean Murphy 
    • $30 
    • 29 d
  • P S 
    • $100 (Offline)
    • 1 mo
  • Bethany Thorson  
    • $50 
    • 1 mo
  • Skyline Kiwanis Donations 
    • $5,920 (Offline)
    • 1 mo
See all

Fundraising team (2)

Amy Boostrom Martin 
Organizer
Raised $2,595 from 20 donations
Mead, CO
Jenna Crane 
Team member
Raised $945 from 10 donations
  • #1 fundraising platform

    People have raised more money on GoFundMe than anywhere else. Learn more

  • GoFundMe Guarantee

    In the rare case that something isn’t right, we will refund your donation. Learn more

  • Expert advice, 24/7

    Contact us with your questions and we’ll answer, day or night. Learn more