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After Years of Misdiagnosis, I’ve Found Hope – Help Me Heal

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Help Me Find Answers After 5 Years of Debilitating Symptoms

Hi, my name is Ryan McCoy, and I’m reaching out for support because I’ve been living with something for the past 5 years that has completely turned my life upside down — and despite endless testing, no one has been able to give me an answer.

❗ What I'm Dealing With:

I live every single day with a constant, unshakable sense of imbalance. It’s not like traditional vertigo — there’s no spinning. Instead, I feel like I’m floating or swaying, both in my head and my feet. Imagine walking through life on a trampoline that never stops moving — that’s what it feels like 24/7.

Even when I’m lying down or closing my eyes, the feeling doesn't go away. Sometimes, it gets worse — objects that are completely still look like they move or shift suddenly. Occasionally, it feels like things around me are jerking or flickering in my vision. It's disorienting and terrifying.

I also experience:

Constant unsteadiness

Internal vibrations

Visual motion issues

Anxiety and panic from the symptoms

Frequent PVCs and PACs (irregular heartbeats)

Fatigue from the emotional and physical toll


I’ve Tried Everything:

Over the last five years, I’ve seen:

Neurologists (including spinal tap, MRIs, EMGs – all normal)

ENTs and vestibular specialists

Vision testing (all came back fine)

Countless labs and bloodwork

Mental health evaluations


Everything keeps coming back “normal,” yet I continue to suffer every day with symptoms that steal my ability to function and enjoy life.

️‍♂️ What I Lost:

Before all this started, I was someone who loved to work out and stay active — the gym was my outlet, my peace, my purpose. Now I can barely keep up with daily tasks, let alone exercise. My independence has been taken from me.

I currently work part-time at Save-A-Lot, but many days I can’t even make it through a shift. My manager has been understanding, but it’s still a financial and emotional struggle — especially since I’m not getting the care I need through traditional systems.

There Is Hope:

After all this time, I’ve found a specialist who has helped people just like me — people with unexplained floaty sensations, balance problems, visual disturbances, and internal instability. They’ve helped others find real relief, and I want to give myself a chance at healing too.

Unfortunately, they don’t accept my insurance, and the out-of-pocket costs are too much for me to cover on my own.


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How You Can Help

I’m raising funds to:

Cover the cost of the initial evaluation and testing

Pay for vision therapy, treatment plans, or specialized care

Help with transportation and time off work to attend appointments


Any amount helps — even just sharing this page would mean a lot.


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Thank You

This has been an incredibly hard journey. Living with something invisible, unexplained, and unrelenting wears you down. I’m doing everything I can to keep going, and this opportunity could be the one thing that helps me finally move forward.

Thank you so much for reading and for caring.

– Ryan McCoy
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    Organiser

    Ryan McCoy
    Organiser
    Saginaw, MI

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