Afra Sıla Koç

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€203 raised of €100K

Afra Sıla Koç

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‌Merhaba! Ben AFRA SILA KOÇ 04.10.2025 tarihinde dünyaya geldim. Topuk kanımdan alınan kan örneği ile ilerleyici kas hastalığı olan SMA TİP-1 hastalığına sahip olduğum öğrenildi. Ailem gelişimin mutluluğunu yaşayamadan, hayata tutunabilmem için mücadeleye girmeleri gerekti. Bu yolda beni lütfen yanlız bırakmayın.

Hello! I'm AFRA SILA KOÇ, born on October 4, 2025. A blood sample taken from my heel prick revealed that I have SMA Type 1, a progressive muscle disease. Before my family could experience the joy of my development, they had to fight for me to hold on to life. Please don't leave me alone on this journey.

Organizer

SMA Children Stichting
Organizer
The Hague
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