From 1st of August 2022, this gorgeous family has had their world turned upside down.
Serenas now 16 year old son Will (16th birthday spent in between hospital visits) was diagnosed with a rather large brain tumour 3.2cm by 2.8cm (shape of a strawberry) called Craniopharyagioma.
This only affects about 120 people in Australia per year.
If you research you will discover that they are usually not life threatening.
Unfortunately for them this tumour is extremely dangerous and complex due to its placement as it is directly in the centre of Wills brain.
The tumour is so large it has completely covered and hidden his Pituitary gland (supplier of important hormones the whole body needs to function) and grown from the brain itself, the part that operates your ears, eyes, throat, hunger, moods and many more.
They believe they are dealing with cancerous cells due to the tumours growth and habits, but will not fully know until after surgery and biopsies are taken.
Surgery is a must, and he is quite frankly lucky to be alive.
After surgery Will has to undergo a rather intense form of radiation treatment (Protons).
Unfortunately for them this radiation treatment isn't available here in Australia yet (they are currently building a centre in Adelaide but it won't be ready until 2024).
So what does that mean for Will??
After his surgery on Wednesday, and if the surgery is successful, William and Serena will be travelling to the USA under the Australian Government for his Treatment.
Why is the Government paying??
Well Williams case is so unique (much like him) and so beneficial to the research of this type of Brain tumour, as not much is really known and treatments are more then often unsuccessful over a 5 yr period.
With his tumours returning and brain damage from exposure to Radiation, it can reduce the quality of life for the patient.
Wait, what the USA?!
Yep the USA, Team William (as the group of specialists he sees calls it) have grown from the best of the best here in Australia, with easily 20 specialists all spending late nights, early mornings, and meetings making sure they offer him the best treatment.
Now there's an International Team of over 30 specialists and many consultants involved.
Well obviously it has to be only the best for Will!!!
Special message from Wills mum Serena....
I love you all and thank you for your love, support and well wishes, and most importantly your Light healing xx
Organizer and beneficiary
Serena Leotta
Beneficiary

