Aelin goes to NAPA Center Boston

If you’ve landed here you probably already know Aelin and what a precious and special daughter we have. We’re the Howards (Cody, Brittainy and Aelin)! Aelin was diagnosed with spinal muscular atrophy in May of 2021 at 9 weeks old. Since her diagnosis she has received gene replacement therapy and has worked so hard in all of her therapies every day. She has made tremendous gains in strength, muscle tone, coordination, and functional independence. We have been blessed with the opportunity to attend a three week long therapy intensive in Boston, MA in May of 2023! This intensive will provide three hours of therapy per day for three weeks and will give Aelin tremendous results toward her strength and mobility goals. This innovative treatment approach is unfortunately not covered by insurance. We are asking that in lieu of Christmas or birthday gifts for our girl that anyone wanting to help donate money here instead. We will have to live in a hotel for three weeks, pay for treatment, travel expenses, food etc and we can’t think of a better gift for Aelin that the opportunity to advance with her mobility and overall independence!!

thank you all for the prayers, friendship, meals, check ins, love and care during our journey into parenting our special girl. We love you all so much! And as always to God be all the glory.