Communication Device for an ALS Patient

I have had ALS since 2005.  It began with weakness in my right hand and slowly spread throughout my body.  I was diagnosed in May 2007 - at that time I was mother to 5-month-old twin daughters and a 3-year-old girl.   My husband had to take parental leave because I couldn't dress my babies or change their diapers.  In 2008, I began to have difficulty speaking.  In 2009, I became wheelchair dependent.  In 2010, I was hospitalized with pneumonia and was given a tracheotomy.  
Since then, I have been completely unable to speak and have relied upon a communication device for speaking.  Currently I rent a device called a Dynavox from my ALS clinic at Sunnybrook Hospital for $80 a month.  It is very slow, crashes a lot and breaks down frequently.  I'm on my third machine right now because the previous two have died.  
I have the opportunity to buy a different kind of communication device, called an EyeSpeak:  https://www.kickstarter.com/projects/886924859/eyespeak-beyond-communication
Early adopters can get the device for $1730US plus shipping, which is roughly equivalent to $1931 in Canadian funds.  Besides the cost of the device and shipping, we will have to pay customs and duty tax on it as well.  I have no idea how much duty should be paid for such a device.
After the early adopter phase is over, the price goes up by a thousand US dollars.  I have never asked for money for myself before - I usually fundraise for other ALS families who are having hard times or friends who are doing walks for ALS charities - but I am convinced that the EyeSpeak will improve my quality of life and enable me to communicate more effectively with my caregivers and family.  When I die from this disease, I pledge to pass this device on to another person living with ALS.  Please help me and you will have my undying gratitude!

Peace and Love,
Ellen

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Organizer

Ellen Swindall-Bailey 
Organizer
Toronto, ON
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