Milo's MAGIC Convention Fundraiser

It's time again for the annual MAGIC Convention! This is our chance to connect with other families of children with Russell-Silver Syndrome (RSS) and other growth disorders, as well as learn about new treatments and therapies. We attended our first convention when Milo was 3, and it was nothing short of life-changing. We were able to consult with the world's expert on RSS, hear about new research that could help our sweet boy, meet other RSS kids (and Milo could see that he wasn't alone), meet other siblings of RSS kids (It's tough being the sibling of a special needs kid.), and see older RSS kids who finally gave us a little peace of mind and reassurance that, if we stuck with all the medical chaos early on, many of Milo's RSS-specific medical issues would likely fade away to memory, and he would thrive and flourish alongside his peers. But the most valuable thing that we got from the experience was simply being around other families who "get it" without having to say a word. When you compliment us on how you would never guess that Milo has problems, we are so grateful. Behind that "normal" is a lot of educating medical professionals, arguing with doctors and demanding counterintuitive treatments, always remembering snacks, formula, medical equipment, clothing layers, sneaking in feedings on the side of the playground so other kids don't see, late nights and sleepless nights researching, compiling charts, so much cleaning, gathering experience from other parents, organizing medical supplies, giving injections through tears, knowing to the exact calorie how much has been fed/consumed that day, multiple, frequent medication adjustments, injections, medical testing, crying, and the list goes on...and on. A big part of helping us achieve that "normal" is MAGIC and the families who make up our MAGIC family, and Milo has come SO FAR, from almost losing him several times, to the happy, active boy he is now, thanks to these relationships we've formed. Of course, there's a lot of expense involved in Milo's RSS maintenance routine, along with his other medical issues, and any new problems that arise. This means that we rely on fundraising for the Convention. Your donation helps pay for transportation, gas, lodging, Convention costs, meals, and incidentals. We appreciate any help that you are willing to give, whether in monetary form, or sharing this post with family and friends! Thank you for your support!
  • Kristy Zelewsky 
    • $20 
    • 83 mos
  • Anonymous 
    • $379 
    • 83 mos
  • Lorinda Green 
    • $50 
    • 83 mos
  • Flying Change Designs 
    • $50 (Offline)
    • 83 mos
  • Bob 
    • $40 (Offline)
    • 83 mos
See all

Organizer

Jessica Kerley 
Organizer
Laramie, WY
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