. to put in laymans terms, her body takes carbohydrates and turns them into lactic acid which makes her suffer in pain in all of her muscles and eventually it will lead to organ failure....all of them. Here's the real deal...PDCD has NO CURE. PDCD has NO LIFE SPAN. Adrianna is going to pass away.
Some children with PDCD live to only 3-4 years old, a few into their teens. Every single day that Adrianna wakes up is another blessing from God.
Adrianna has been on every formula, special diet even feeding tubes but she still is only 23 pounds at 3 years old. She cannot crawl, walk, talk or do much of anything for herself. However, she is a happy happy little girl. When she isn't in pain, she's driving her Minnie Mouse car that was specially adapted for her to be able to learn to drive herself without using pedals. Every single day brings new challenges. She has been poked, proded, and been through blood tests, MRI's and all sorts of other things just to try to help.
Her mother, Lucia Innocenzi is a stay at home mom who's every waking moment is spent on Adrianna. She's been hospitalized countless times. She goes to therapy, therapist come to her, goes to school for therapy and doctors appointments run their lives.
As Adrianna gets older, she is in need of adaptive equipment: new wheelchair, leg braces, and other physical and occupational therapy items. They need an accesible car/van, the house needs to be retro fitted with wheelchair ramps, bathtub/shower that she can get into in her wheelchair, and not to mention the medical bills.
- Nasrin Dastouri
- Joe and Cookie Kearney
- Mehrdad Dastouri
- Matthew Cox
- Cathy Matjazic
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