Adriana Capri
Donation protected
Adriana Capri is talented, artistic, creative, funny, smart, and beautiful. At 17, she is a typical teenager; eagerly anticipating her high school graduation, and looking forward to going away to college. Unlike most teenagers, however, Adriana suffers from Friedreich’s Ataxia, a progressive and debilitating neuromuscular disease, which is a form of Muscular Dystrophy.
FA first attacks balance and coordination, and eventually leads to a loss of mobility and control of bodily movements, speech dysfunction and hearing loss, muscle weakness and scoliosis. It also presents a serious risk of diabetes and heart disease. FA affects approximately 1 in 50,000 people in the United States. There is currently no treatment or cure for FA.
Adriana was diagnosed with FA when she was 12-years old. Dancing from the age of four, she started losing her balance, tripping often and seemed to be having difficulty with coordination. She has already endured a grueling surgery to correct the scoliosis that she developed as a result of FA. Today, Adriana spends most of her time in a wheelchair.
Despite her FA diagnosis, Adriana is a shining light in the universe; she embodies strength, gratitude and perseverance. She works to raise funds for the Friedreich’s Ataxia Research Alliance. She is a talented artist, and has recently been accepted into the fashion program at Marist College. She cheers for her brother at his hockey games; rocks a bikini; and understands the importance of pairing the right chocolate chip cookie with her shake. She is a successful student, a good friend, a much-loved daughter and sibling. Adriana is truly an inspiration. I hope to be like her one day.
While Adriana has met every single challenge that has been presented to her with grace, dignity and fortitude, she and her family could use a little assistance meeting the financial challenges that they face because of FA. In order for Adriana to live with as much freedom and independence as possible, particularly while she is away at college, it is essential that she obtain power mobility equipment such as an electric scooter to assist her in getting around campus. These essential items are extremely expensive and not covered by health insurance. A donation in any amount would be deeply appreciated by Adriana and her family.
FA first attacks balance and coordination, and eventually leads to a loss of mobility and control of bodily movements, speech dysfunction and hearing loss, muscle weakness and scoliosis. It also presents a serious risk of diabetes and heart disease. FA affects approximately 1 in 50,000 people in the United States. There is currently no treatment or cure for FA.
Adriana was diagnosed with FA when she was 12-years old. Dancing from the age of four, she started losing her balance, tripping often and seemed to be having difficulty with coordination. She has already endured a grueling surgery to correct the scoliosis that she developed as a result of FA. Today, Adriana spends most of her time in a wheelchair.
Despite her FA diagnosis, Adriana is a shining light in the universe; she embodies strength, gratitude and perseverance. She works to raise funds for the Friedreich’s Ataxia Research Alliance. She is a talented artist, and has recently been accepted into the fashion program at Marist College. She cheers for her brother at his hockey games; rocks a bikini; and understands the importance of pairing the right chocolate chip cookie with her shake. She is a successful student, a good friend, a much-loved daughter and sibling. Adriana is truly an inspiration. I hope to be like her one day.
While Adriana has met every single challenge that has been presented to her with grace, dignity and fortitude, she and her family could use a little assistance meeting the financial challenges that they face because of FA. In order for Adriana to live with as much freedom and independence as possible, particularly while she is away at college, it is essential that she obtain power mobility equipment such as an electric scooter to assist her in getting around campus. These essential items are extremely expensive and not covered by health insurance. A donation in any amount would be deeply appreciated by Adriana and her family.
Organizer and beneficiary
Jacquelyn Todaro
Organizer
Melville, NY
Giuseppina Capri
Beneficiary