Adreanaleukodystrophy

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21 donors
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£2,630 raised of £100K

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Adreanaleukodystrophy

Adreanaleukodystrophy

0% complete

£2,630 raised of £100K

21 donations
Donation protected
Help Matthew Revill Fight CALD & AMN

Our beloved Matthew Revill has recently been diagnosed with Cerebral Adrenoleukodystrophy (CALD)—a rare, progressive, and devastating condition that affects the brain’s neural pathways. Alongside this, Matthew also suffers from Adrenomyeloneuropathy (AMN), which causes stiffness, weakness in the legs, difficulty walking, and nerve-related pain.

These conditions are life-altering. Without the right support, Matthew may not walk again. There is currently no cure for CALD or AMN—but that doesn’t mean we’re giving up.

What’s Next for Matthew?

Now begins the fight of his life. With the guidance of medical professionals, we’re focusing on:
• Symptom management and pain relief
• Specialist physical therapy
• Monitoring and managing complications
• Access to cutting-edge clinical trials that offer hope—not just for Matthew, but for others too

Matthew is more than this diagnosis. He’s the quiz master extraordinaire, the life of the party, and without a doubt, the most witty and brilliant brother anyone could ask for. He’s always been our hero—now he needs our support.

Why We Need Your Help

The road ahead involves:
• Specialist medical equipment
• Ongoing physical and occupational therapy
• Regular travel to London for appointments and, if successful, access to a worldwide clinical trial

i also need an accessible house!

These costs are significant—and every donation, big or small, will go directly toward improving Matthew’s quality of life and giving him the best chance possible.

⸻

How You Can Help

Your generosity will help us focus on what truly matters: Matthew’s health, comfort, and dignity as he adjusts to this new way of life.

Whether it’s £5 or £500, every donation will make a difference. If you’re unable to give, please consider sharing this page with others who might be able to help.

From the bottom of our hearts, thank you.

— Matthew’s Family

thank you for your kind donations so far I have an electric wheelchair and riser recliner.
Donate

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Organizer

Matthew Revill
Organizer
England
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