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Let me begin by telling you our story about how we came to America from Romania about 26 years ago when I was only 9 years old…Just my mother and i. It wasn’t easy but I remember her always working hard to make sure we had what we needed in order to survive. She is a hairstylist…a great one…but she isn’t only a great hairstylist but a true artist, a “healer” of hair, and a nurturer of souls too - that’s what she was called by those whose hands she had touched.; she was a good support for all of those suffering… Who knew that in December of 2021 her life would turn into the most awful nightmare. After almost two years of suffering going through 16 different doctors, a multitude of tests: ultrasound, CT scans, MRIs, HIDA Scan, ER many times, and wrong treatments after which she was degrading, losing 70 lbs, her joy and hope (especially when you are told: you are fine; go home, there is nothing wrong with you; you may need a psychiatric evaluation, etc) because, yes, her symptoms were unbearable, inexplicable and unreal…I couldn’t understand what had happened to her- from that happy and full-of-life person, she became an absent, fade-away pack of bones! Even though I wasn’t near her 24/7, i knew how much she was struggling to deal with all those crazy symptoms; one worse than the other, from depression, anxiety, mood swings, neurological issues, huge gastrointestinal problems, hair loss, to severe dehydration with psychotic episodes and huge electrolytes imbalances with painful and twitching muscles all to the point of being in desperate need, every 3 days for urgent IV fluids to be able to function… My mom’s eyes once full of sparkle and expression had become dry and imbedded back in her skull and with a pronounced vision problem… “Two years ago I was fine, functioning perfectly, and now against all the treatments I was following everything in my body is falling apart along with my vision which is deteriorating rapidly day by day… how I am going to take care of my clients?”…plus the feeling that I am going to lose my mind…from the dehydration? or probably, I do need a psychiatrist. It's probably all in my mind? like one of the doctors said … it is possible to have good test results and at the same time to be a total disaster many exhausting questions with not many answers Doctors, tests, waiting -excruciating pain and stiffness throughout my entire body; you’re fine??! Another doctor, more tests more waiting, more pain, nothing is working right, you are fine, I am going crazy…I am going crazy, crazy..: “This isn’t right, it can’t be right, I have to push myself, gather all the strength I have left, and force my damaged cognition to look for answers… But first, I needed some fuel; Fluid IV so my brain and body could become active again …by now the pain was part of my life; I knew what misery is and wanted to be better, to be healed to be able to function again and be joyful not screaming of despair …many things in my body they almost stop working…I had no hopes…I accepted even death without any fear of it…and then I was suggested to go to a different clinic, a bigger one with many more possibilities… Finally, Dr. Grossgold had solved the mystery of what I had been living for almost two terrifying years: two strands of Lyme disease few active viruses, and mold on my Pituitary gland interfering with my water-salt regulation and electrolyte imbalances, interfering with my metabolism and with my adrenal gland function. It was somehow a release to find out this and a burden at the same time. The physical pain was accompanied by my anxiety and worries facing my future and my capacity to succeed from now on…no insurance is accepted…and my treatment is very costly and is needed for a long period…I am starting another battle, a battle between my survival and the financial issues…all my savings gathered through hard work are gone: doctors, treatments, and therapies; I have learned many lessons in this agonizing time; I learned that I can always talk about my pain and ask for help and support when I feel I can’t go on. Any contribution from you would make huge impact in my healing and then once healed i will be honored to pay it forward”… And yes, this is my mom… always a fighter and a great person! She deserves a chance and I would like to bring to attention her very true and terrible story and the difficult situation she is facing and to ask for financial support for her Lyme & other treatments. She has spent all she had, $85.000 trying to find a cure to the inferno she was going through. Unfortunately, Lyme disease is underestimated and ignored by western medicine which makes it more difficult and much more costly. The treatment is extremely expensive and if not treated it can be fatal."
Organizer and beneficiary
Adina Miron
Beneficiary

