I’m Charlotte and I’ve created this go fund me to help support my mum who has struggled with cancer and the side effects of this disease for 8 years now. Here’s a little story of my mum and her journey so far.
In Oct 2011 my mum, Adele, was diagnosed with a rare form of breast cancer called Pagets disease. In 2011 she underwent a right breast mastectomy followed by a course chemotherapy and radiation.
After a year of follow up appointments and regular scans, she then opted for a left mastectomy in 2012 to reduce thr risk of the cancer spreading and 1 year later re-constructive surgery in 2013 to try and get some femininity back but unfortunately things didn’t quite go to plan, what should have been an overnight stay, ended up being 7 operations, 35 blood transfusions and a skin graphs, she endured 5 more weeks in hospital fighting for her life only to come home with one breast.
In Christmas 2014 she began to have what was thought to be indigestion issues, we went to see the doctors who said we should take no chances and have some further scans done, to our horror and worst nightmare the scans came back and she was told the cancer had spread to her lungs, liver and bones, her diagnosis was only 6 months.
How much can any one person take……….she's a fighter right.
She started chemotherapy immediately, to try and get her body under control. At same time we started a lot of complimentary therapy, anything is worth a try when you are so desperate. A couple of months later Adele was getting better, here body was reacting well from the various treatment and therapy, things were looking better for her future.
In May 2015 a further scan showed some metastasis in the brain, the scans showed a total of 49 tumours, she was told that she wouldn’t make it to her 42nd birthday in September. The option given to her by the doctors at the time was whole Brain radiation, any radiation is not good but that is the worst it's a one chance only option.
My Mum and Dad, have been on this journey together and they decided to find another alternative that was not on offer buy their doctors. They did hours of research to find an alternative treatment that would allow more options down the track. Miraculously they found some one to help in Sydney at the Macquarie University, we were booked in a soon as possible, we packed our bags and off we went, the amazing treatment was over an 8 hour period and cost $28,500, every penny well spent.
Fast forward to January 2018, we had just came from a holiday of a lifetime, creating memories, to find on my Mums first scans in March showed that some of the tumours had reoccurred, more radiation was required, lucky she did not have the whole brain radiation earlier as this would not have been an option. Between May 2015 and March 2018 Mum has had radiation treatment 5 times, the doctors say she should not be here, she is a miracle.
A couple of months after her last radiation treatment my mum started with a dizziness, it took nearly 6 months and a visit to every specialist in Brisbane to finally be diagnosed with a symptom called Cerebellar Ataxia & Radiation Necrosis, this is a very debilitating disease, with everything my mum has been though, this is by far the worst, my Mum cannot not now walk unassisted and needs a wheel chair and walker, she is struggling to speak and she can no longer do simple things that we all take for granted daily.
Again the battle goes, with no treatment looking to be available In Australia wide due the FDA regulations, we are forced to widen our search for a treatment that will help to fix my mum...….and we think we have found one, the only problem being that the treatment is in San Francisco over a period of 2 weeks and at a cost of $110,000. I am hoping between fund-raisers, my Dad working and generous people we can raise as much of the funding as possible.
Please if you are in the position to help, we will forever be in your debt.