
Addison Rose - A Noble Cause for Infant Epilepsy
Donation protected
Hi, my name is Eric Liden and this account is being set up for my good friend, Kenny Roses' daughter Addi.
Little Addi is a beautiful 6-year-old girl who suffers from a rare case of Early Infantile Epileptic Encephalopathy.
She suffers from chronic seizures at any time without the ability to speak, unable to let loved ones know what is wrong, what she is feeling, or even if a seizure is close to striking.
Addison is unable to talk, eat, stand, or control her movements, due to this condition. She needs help with the everyday motions and movements we all take for granted.
She is currently using standers and a special chair that she spends most of her time in. But, unfortunately at this time, she is outgrowing both of the pieces of medical equipment that she relies on daily.
Because of this, it is very painful for her to sit, stand (with assistance), or transfer to her bed, which her father has made by hand to fit her needs due to the price of what a medical bed would cost.
All of the things we take for granted are a struggle for this little girl and her family.
She has gone through many procedures and different therapies that have been very tough on her and her parents. Most of these are being paid out of pocket due to lack of coverage by the insurance plans due to her unique rare case. Medical bills have been piling up due to non-coverage and that has made it extremely difficult for her parents as you can imagine.
I am asking for donations to help the family buy a new electric medical bed, a specialty chair, and a pair of new medical standers, to help to pay off medical debt and hopefully give them a cushion towards some of the future treatment she needs.
As we all know medical bills are outrageous, let alone for specialists, and these bills prohibit them from purchasing new standers and a specialty chair.
This family and little Addi's story are very close to my heart. I hope you find our cause close to yours.
Thank you,
Eric J Liden on behalf of
Kenneth Rose & Addison Rose
Organizer and beneficiary
Eric Liden
Organizer
Fresno, CA
Kenneth Rose
Beneficiary