Addison Haller' Scoliosis Treatment

Dear friends,

I am starting this GoFundMe page on behalf of my brother, Zach and his wife, Tina; whose daughter, Addison was diagnosed with scoliosis August 18, 2017. This campaign is set up to help alleviate some of the financial pressure so they can focus on Addison's corrective treatment. 

They have also been applying for grants to help subsidize a non-surgical treatment program that is not covered under their health insurance policy. 

Below is their story in their own words.

A sincere thank you for reading, sharing, and donating. Every little bit helps and we are grateful. 

Shani Bayne Haller
_________________________________________________________________________________________________________________

Addison is on a journey to correct her scoliosis with an alternative treatment method that is not covered by her health insurance. 

On August 18, 2017 Addison's pediatric doctor identified a scoliosis curve in her spine during a regular check up. We did not know anything about Scoliosis and Addison was not in any pain. After doing some research, we discovered that spinal surgery is a common method of treatment for scoliosis curves that are more than 40 degrees. However, The Scoliosis Academy in Campbell California has developed a treatment program to help patients correct scoliosis and avoid surgery. We felt this treatment could help correct Addison’s scoliosis and give her a pain free flexible back for her whole life.
     
On October 1,  2017 Addison’s MRI showed her largest curve was a 33.9 degrees. We felt the urgency to act immediately and started the three week intensive program with The Scoliosis Academy. The following three weeks were the hardest our family has ever experienced. 

Part of the treatment is a custom traction chair designed and built for the shape of her scoliosis curve. The chair has 9 pads and straps that force her spine straight and hold it in a neutral position for 21 minutes. Her tears of pain were so intense during these chair stretches while Zach and I turned the cranks into position, it was almost unbearable. Addison was so brave and showed great strength that we have never seen in her before. By the end of the three weeks we returned home with her stretching equipment and a customized brace to be worn 23 hours a day. The traction chair exercise became easier over time and Addison was able to do the 21 min stretch without pain.

We continue the 2.5 hour daily stretching routine at our home and wear her brace 23 hours a day. Each three month checkup is one week long that requires a new MRI, consultation with the specialists and necessary adjustments to Addison's equipment. Many tests are completed to help determine the cause of why her body developed scoliosis. She will need a new brace as she grows to keep the spine in a supportive position.
 
We have had two checks up so far with success and set backs. Addison’s back is currently at 20 degrees which is a great improvement from the beginning 33.9 degree curve. We are confident that this treatment is working for Addison and we are ready for the hard work ahead to get her spine to a 0 degrees with time. 
     
Unfortunately, this treatment is not covered by Addison health insurance. Our out of pocket expenses so far are over $50,000. The treatment over the next 4 years will be another $40,000. With the total of roughly $90,000 we feel it is time to ask for financial help. 
     
We will continue treatment and not give up as Addison has a lot of growth ahead of her which can bring back scoliosis as fast as we are correcting it. She will continue to wear her brace and do the prescribed exercises at home over the next 4 years while returning to the Scoliosis Academy every three months for check ups. We hope to accept grants and contributions from those who can help.

Thank you from the deepest part of our hearts for taking the time to be a part of our journey. We feel so supported by our family, friends and community we are forever grateful.   

Zach, Tina, and Addison Haller
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29430472_15262794020_r.jpeg
29430472_15262792650_r.jpegSix months of progress.

29430472_15262792960_r.jpegScoliosis Academy in Campbell, California

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Thank you for sharing.

Donations

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  • Patrick Gorman 
    • $25 
    • 3 mos
  • Patrick Gorman 
    • $20 
    • 4 mos
  • Patrick Gorman 
    • $50 
    • 9 mos
  • Willie Fatso 
    • $200 
    • 21 mos
  • Michael Vandeven 
    • $33 
    • 24 mos
See all

Organizer and beneficiary

Shani Bayne 
Organizer
Los Angeles, CA
tina haller 
Beneficiary
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