Adam's Double Lung Transplant - CF

Hi Everyone, my name is Lindsay Thorne and I’m Adams wife. We have been happily married for one year. I have known Adam for 7 years before that and was well aware of his life with CF (Cystic Fibrosis). Adam had been ‘holding his own’ since I’ve known him. Even though his lung function was low, he continued to live as normal a life as possible - and I can honestly say, I have never heard him complain about his condition. Since I have known him he successfully completed a computer systems and networking program and has held down a full time job at PAL Aerospace as and IT professional. Quite a feat for someone in his condition!


  Just over 2 months ago, while on a business trip, he got a serious cold - or so it seemed. Upon admission to hospital it was found his lung function had dropped to an all-time low of 15%. We were both devastated. We were informed by doctors that the time to consider a double lung transplant was NOW! Both of us knew it was coming eventually, but we were hopeful that it would be in the distant future as he is only 26 years old.

   Living with Cystic Fibrosis is a challenge. Countless lung infections and hospitalizations lead to permanent lung damage. To be considered for transplant, a person’s lung functions has to be less than 30%. Adam’s lung function has been on a steady decline, leaving him with no reserve.

   On November 15, 2017, we will be relocating to Toronto from St. John’s, to wait for his second chance at life. It’s a big step.

   What people may not know is the financial burden that a double lung transplant will put on families. There are numerous costs associated with relocating for a transplant that are not covered by healthcare. Some of these costs include accommodations, meals and transportation. All of these costs are out of pocket expenses. This doesn’t even touch on the recurring bills and concerns that we leave back home.

   We have been saving as much as we could in anticipation for this time, however, due to the cost of living in Toronto, we are realizing that our minimal savings will not go very far.

   We could use your help to alleviate the worry of finances from our already worried minds. We need to focus on getting ready for the operation and recovery instead of worrying about money. Any amount you could give would be much appreciated.
 

   I really can’t put a price tag on the joy and excitement of being given a second chance at life and being able to breathe. This is my one wish for Adam!

   Thanks in advance for reading this and supporting us, if not financially, than in thoughts and prayers, we need those too.

   If you would like to read more about Cystic Fibrosis please visit the website (www.cysticfibrosis.ca ) .

   As time goes by I will write with updates on Adam’s progress.

Our love to you all!
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Organizer

Lindsay Thorne 
Organizer
St. John's, NL
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