Help Adam fight DIPG cancer

My name is Adam, I was diagnosed with Ponsglioma, or DIPG (Diffuse Intrinsic Pontine Glioma), an aggressive brainstem tumor ,9th of August 2022 after months of my mothers intensive struggle to be heard about my different symptoms. My glioma was mesured to be 5x3,5x5 cm and after radiation it reduced by 1 cm.

Every year, between five and ten Swedish children are diagnosed with pons glioma. They usually die within a year of diagnosis and Swedish healthcare only provide with palliative care due to lack of knowledge and successful treatments. Therfore Adams only chance of survival it to participate in a clinical study , in this case a study based in Switzerland with the medication Onc201 combined with Paxalisib wich is not avalible in Sweden. The study is overlooked by Sabine Mueller, MD, PhD, one of the most Highly respected Pediatric Neuro-oncologist in the world. Because it is a study we hade to pay for the treatment ourself the first 6 months wich he started in 20th of december 2022.

Today in november 2023 We are still in the study and a very strict diet and supplements to preserve his strenght to fight the cancer. The lifestyle we need to uptain for Adam is hard and expensive and that is why we still Will keep the found open for Adam.

EDIT: june of 2025 we recived devestationg news, Adams cancer is not longer stabile, its growing and we need to change medical study. and we are starting on step 1 again.

facebook: Adam DIPG warrior sweden