32yr old terminally ill parent

Upfront clarification: My legal name is Olivia Kizewski, but I go by Alexis/Lex, {Alexis Kannenberg,} I was hoping one day to legally change it for comfort but I am an extremely honest person with no legal issues. I am not hiding from anything. Edit : 2/5/2023 I no longer can pursue legally changing my name now with how little time I have left. It’s a hassle to change so many legal documents with very little time left ahead.

2/12/2023 - We would like to proceed in a different direction with funds going forward. The goal is to buy a converted school bus - skoolie - with a wheelchair ramp for accessibility. (Looking in the $20k area but it all depends - we might even buy something basic enough for just a bed and make it work. I will make whatever funds we have available work.) I believe this is my families best chance for success after my death. We live in a very bad rental right now (I cannot stress how horrific this rental situation is, if you read through some of my updates though, I do go in depth on some of the main issues,) and I know financially, after I am gone, even as inexpensive as this place may be, I don’t think it’s financially possible (or safe) for them to make it without my income here. I worry about their permanent housing situation. We have friends and family with the land for them to park, but not house them in the event of my eventual extremely early death. So making sure they have a any form of home permanently is what I need to make sure they are ok. (I also want to stress that it seems unrealistic to buy a house for them as beautiful as that would be. The skoolie seems far more reasonable financially to consider besides that they can place it on family land and not worry about renting and all the extra expenses that way.) This is the easiest and cheapest option I believe. And in the mean time, we would like to travel low cost on our monthly income in the meantime. Just drive around and get lost and swim in random lakes, rivers, hopefully the ocean. I want to sleep under the stars and just create good memories with Tyler and Luneth with the small amount of time I have left. I would absolutely document every second of it. We would drive back to our home-base here in WI and park at our relatives once a month, I would get treatments, do scans and appointments for Luneth and myself, pick up our DME supplies, stock up on food, and then hit the road again. (I have already spoken with all of my Drs about this plan and they all agree it’s well thought out and doable.) That’s the goal with the time I have left. That is what I want to be happy and feel secure and stable. Tyler is looking at online classes and grants for schooling to better his financial situation for after I am gone but it’s a process. We haven’t figured out how to proceed quite yet that way. It’s also hard to gauge how much time I have. In a perfect world, I want to keep myself going long enough to make sure they are stable financially and get a Tyler through a degree, but I know that my cancer is moving fast and my symptoms are making it harder daily even. We don’t have a timeline. 

Lately I have not been good at all physically and mentally. I accidentally threw my license away in the garbage this week I believe. My brain is overwhelmed with stress and I am very shaky. Like my whole body is just tremors. Sleep is near nonexistent as well. I have neuropathy starting up again too in my hands and feet. I also did get a new portacath placed in my chest for vein access as part of my medical update. (I am pre-lymphedema in my right arm so I am not supposed to have vein access on that side, and my left arm was tore up from my inpatient in Memphis during my reoccurrence and pregnancy inpatient care when I went through dialysis and many infection issues and they had to keep moving my vein access around.) I needed one going forward for targeted IV dye brain radiation and future chemotherapy that is in progress of being planned currently. (I should be in radiation in the next week and then they want to start my first chemotherapy 3 weeks later and once a month I will get that along with bone infusion medications.)

I also want to upfront disclose our monthly income so that it is understood what we are working with at this time. We receive $1986 a month. This is SSI that I receive for myself and Luneth. We are working on getting Tyler into a program that would pay him to be my caregiver, though we only just started that process, but he does take care of me and is not working at this time because of our family needs between me and Luneth. Our homestate has a program that may be able to help us financially this way since he is my caregiver physically. (I am not sure we qualify but we are looking into it because the funds would help a lot since he cannot work outside of the home right now.) We are also on foodstamps and WIC. (There isn’t a point to lying about our situation.) Our child, who is tubefed, is on insurance that covers his medical supplies and toddler formula. 

If we can make the bus work, funds would be gas, insurance, a bit of food though we will want to try to stock up on our once a month stop in WI, but I think we should be OK. Like really ok. All the math I’ve done, we should be able to budget pretty well and be able to prepare for the end and have them set up for when I am gone. 

Anyways, there’s my updated goal. 

Original - ⬇️⬇️⬇️ (Slightly revised) (I have all achieved revisions in updates)

Hi. I originally made this GoFundMe to help me and my family get into accessible housing. I am diagnosed with a rare aggressive terminal stage 4 metastatic breast cancer. I am 32 years old. My son also has medical issues. Unfortunately we were unable to obtain the needed funds from the original GoFundMe in enough time (for accessible housing) and my symptoms became too much for my tiny family and myself to manage in the apartment we were renting. We relocated back to our homestate November 1st 2022. We borrowed money and overdrafted our accounts and took out loans to relocate. 2/2023 - I have made arrangements with the bank to start repaying our overdrafts but we can only afford $10-$20 a month in repayments right now at this exact moment. We are trying to get caught up in other backed bills as well. (We have a utility bill that is $600+ behind that we are making payments on. It’s always some bill to care for.) It’s better than nothing but I am unsure they will be paid up before I am gone. It was a couple thousand in overdraft fees.

The only hope I have left is this GoFundMe to pick up. I’m afraid to leave my family in so much debt. Let alone the fear of budgeting month to month right now.

Please feel free to ask any questions. I’m happy to answer anything or provide any proof. (I am @Strngr2hrslf on most platforms, as well as CashApp and Venmo if you have prefer to help there instead.)