Hello there!

We are Phoebe and Aden Kerridge and we are Liams parents. Liam has a rare condition called Phosphoglycerate Kinase Deficiency and he is 1 of 30 cases diagnosed worldwide and to our knowledge the only case in Australia. In laymans terms this means that his body doesnt use the right sources when breaking things down for energy. So instead of using things like carbs or fats, his body starts using his muscle, which results in very low muscle tone, and him being very suspect to illness as his body is flooded with the toxic breakdown of his muscles being used for energy. This has lead to Liam being a wheelchair user, and with his biological dad being 6 foot 6 inches, he is starting to show signs of being a very big boy.

We were lucky enough through Variety Childrens Charity to be awarded a 45,000 community grant to be used for 3rd row conversion for Liams Wheelchair access. Unfortunately the NDIS has said that they will not fund a 3rd row conversion and we need to go for a 2nd row conversion.

This has meant we need to find a new vehicle, and the new vehicles are proving to be a bit more expensive, and as we are changing the 2nd row for access, we have to pay out of our own pocket the cost to make the remaining seats safe for Spencer and Beckham (newborns) car seats, which can be upwards of 5k.

Me and Phoebe are very lucky to have such great supports for Liam in place, but with Liam outgrowing our current vehicle and a newborn on the way, we are in a position now where we need to fundraise to support him and the familys development.

Any money that isn't spent will be donated to SWAN (Syndromes without a name), to help other kids like Liam. We appreciate all of you and your support x