Kynans ALD fight
Donation protected
Hi I’m Kellie Kynans mum
Kynan was diagnosed with Adrenaloukodystrophy June 29th 2022
- he was given 2 years to live He is still with us and fighting strong But unfortunately we have had to go holistic and Natropath to keep our boy here it is so important to keep kynans fatty acid chain low so there is no build up to damage the myelin sheath as that will shut his body down taking away his eyesight speech and ability to function This is rare genectic disease that is so cruel that’s shuts the body down so fast as it is a progressive disease that affects the nervous system We are waiting to hear about a trial in Paris so we need to get Kynan there our specialist looking into it any amount will help us keep fighting so please share times are tough any amount helps Kynan stay with us Kynan deserves every chance to stay until they find a cure
Organizer
Kellie Oconnor
Organizer
Ravensdale, NSW