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Abel Grace Fund for Skeletal Dysplasia Research

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Abel Grace Kilby 8/15/22-8/17-22.

On August 15th, 2022, Britt and Matt Kilby welcomed Abel Grace into this world.

“For 38 hours and 12 minutes, the whole world stood still and it was just the three of us. Abel you fought so hard for us, and we are so proud of you and lucky to be your parents. You were such a bright light in a broken world, and I will never forget the incredible impact you’ve had on this Earth. You taught us so much about life, and we are forever thankful for every moment we got to spend with you.

Heaven gained such an incredible angel today, and I know that she will watch over us forever. Abel Grace, mom and dad love you, forever and always.” -Britt and Matt Kilby

Abel Grace Kilby went to Heaven at 12:51pm ET in her mom and dad’s arms. She was at home and surrounded by her family and so much love.


Abel Grace was diagnosed with Skeletal Dysplasia 9 with polydactyly, also known as short-rib thoracic skeletal dysplasia during her 20 week anatomy scan. This is a lethal condition resulting in a small rib cage that does not allow lung development.

In honor and remembrance of Abel Grace Kilby, please consider a generous donation to support skeletal dysplasia research.


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    Organizer and beneficiary

    Caitlin Braun
    Organizer
    Annapolis, MD
    Matthew Kilby
    Beneficiary

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