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Hi, my name is Marielan Fatula I am a 55 year old fighting a lung disease called Bronchiectasis. I have been battling this disease for 49 years. It is not curable. It is a progressive disease where only the symptoms can try to be kept under control. The disease presents itself very much like Cystic Fibrosis.
It causes bacterial and fungal infections to attack my lungs. Some of the symptoms are airway blockage, due to a mass production of infected sputum, that I can't clear in a normal fashion. I have a decrease in oxygen, lower immune system, that leads to other infections, asthmatic restricted breathing, and complete exhaustion, to name a few. I have had 2 lung lavages, 5 Peripherally inserted central catheter (PICC). A PICC is a thin, flexible tube that is inserted into a vein in the upper arm and guided (threaded) into a large vein above the right side of the heart called the superior vena cava. This is how the medicine is delivered to my body. Oral antibiotics are not effective against my condition. In the past 3 years I have had 2 inpatient hospital stays, countless xrays, 5 picc lines, and 2 pulmonary lavages to flush my lungs of secretions. I generally have a picc line placed every 6 months to deliver i.v. antibiotics. There are several antibiotics that are effective in fighting these infections. I am allergic to 3 of them, resistant to another, and currently only responding to one. I am overwhelmed with medical bills. I am currently in debt to the company that provides the medication. They will not provide future medicine until I clear my balance. If I can't pay for my i.v. antibiotics, the infection will overtake me. I am literally one infection away from dying.
I know there are so many others that have it much worse than I do. My heart breaks for them. I'm asking for help to cover the cost of overwhelming medical bills.
Thank you for taking the time to read my story.
I appreciate you and the help you could provide. God bless you.
Thankfully
Marielan Fatula
Organizer
Marielan Fatula
Organizer
Front Royal, VA