Erika Gilbreath Lindsey is organizing this fundraiser.
Morgan, born August 5, 2002, left this world November 8, 2014. Morgan battled a horrific disease, Pyruvate Dehydrogenase Deficiency. Two years ago Morgan's brain began to shut down, seizures got worse, bladder and bowel started shutting down, and her body had lost control. She couldn't maintain her own body temperature, she had returning pneumonias‘, uncontrollable seizures having 100s in a day, she had days of uncontrollable high heart rate and respiratory rate, and needed oxygen daily. She lost her ability to talk, even though she had limited vocabulary it was HER vocabulary, she stopped rolling on the floor, she couldn't be around large crowds, she could no longer stand (even with help). Our baby lost any kind of independents that she worked so hard for. In two years Morgan became so weak that going to a doctors appointment would wear her out so bad that she would sleep the rest of the day and through the night. But when organs started to fail, seizures began to worsen, and the ataxia started....we knew that Morgan wouldn't be with us much longer. On Thursday November 14 we will be burying our baby, our child, our little girl. This horrific disease took her life, but her Daddy and I did everything we could to make her life as enjoyable as we possibly could. We are, again, asking for your help. We need help to have a memorial service for our baby girl.