As most of you know, we lost our little princess Lily on Friday June 6th. Our 4-1/2 year old silent angel was born with Rett syndrome; a regressive chromosomal disorder that affects mostly girls. Her battle with Rett combined symptoms equivilent to Parkinsons, Cerebral Palsy, Autism and Epilepsy. The neurological disorder included severe impairments, which affected every aspect of Lilys life; her ability to speak, walk, eat, and even breathe.
Lily was admited to Mary Bridge Hospital just prior to memorial day weekend with influenza and pnuemonia. She was on life support for over two weeks before loosing her battle.
Though we know she is in a better place, this is a very overwhelming time for the family and those who loved Lily. In an effort to help the family with costs, we are encouraging those who can, to rally together with friends to raise funds for Bob, Jackie and their family, aka "Love For Lily".
We cannot express enough appreciation for the amount of love and support you have all given. Thank you so much for your prayers and support.
God Bless you!
DonationsSee top donations
- Tara Sands
- Ja Cinda Hamilton "Bruglia"
- Keith Martin
#1 fundraising platform
More people start fundraisers on GoFundMe than on any other platform. Learn more
Expert advice, 24/7
Contact us with your questions and we’ll answer, day or night. Learn more