Love For Nick

Nick was diagnosed with a rare chromosome abnormality, prior to his 1st birthday, in 1989. He is 1 of 1,100 diagnosed worldwide with 22q13 deletion syndrome, also known as Phelan-McDermid syndrome.( www.pmsf.org)

Since 1998, affected families, doctors, and others have gathered every two years to learn, share, and support one another with information and encouragement in caring for these unique individuals. July 2014 will bring about the 9th international family support group/medical conference.

It is the Seiler family's wish to attend this conference in Orlando, Florida and this page has been set up to help raise funds for their travel/trip expenses.